Ep. 57 September End-of-Month Update and film Extremis

 

In today’s episode Dr. Wyatt thanks 3 new supporters on Patreon.com/eolu:

  • Joan Roellchen-Pfohl, RN
  • Martha Johnson – author of the upcoming book “Take Charge of the Rest of Your Life”; learn more at www.meetmarthajohnson.com
  • Marggie Hatala – author and teacher of a writing class related to end of life; her books are “Sally: A Memoir” and the forthcoming “Life as Prayer”; learn more at www.marggiehatala.com

Next she begins the Update for September by talking about the new documentary film currently streaming on Neflix: Extremis, which won 1st place at the Tribeca Film Festival. Please see this film which takes place in the ICU at Highland Hospital in Oakland and features Dr. Jessica Nutik Zitter. This is a must-see film that brilliantly depicts the conundrum that exists at the end of life when painful decisions must be made. By showing the real-life conversations that take place in the ICU between staff, family members and patients, a case is made for everyone to complete their advance directives and prepare their loved ones to honor their wishes at the end of life. But the painful process of decision-making becomes apparent as each individual struggles with the unknown and the unknowable in these dire situations.

The other topics covered this month include:

  • BMJ Online report that patients who receive hospice care for the last 6 months of life have better pain control, fewer hospital days, and are less likely to die in the hospital or ICU.
  • Researchers at John Hopkins found that their palliative care program led to  savings of ~ $19 million over 5 years in addition to improved quality of care and patient satisfaction.
  • Study originally published in Health Affairs and reported on Reuters online showed gaps in palliative care in the US. Read the article.
  • “What it feels like to die,” an article in The Atlantic discusses the active dying process from the patient’s perspective. Read the article.
  • Friends and Family Letter Project by Dr. VJ Periyakoil at Stanford includes 7 prompts for letter writers to leave messages for their loved ones. Read the article.
  • “7 Songs for a Long Life” documentary from Scotland that depicts how terminally ill patients use singing as therapy. Read the article.
  • The Friendly Atheist Julie Stahl reminds us not to impose our own religious or spiritual beliefs on those who are grieving and may not share your perspective. Read her blog.

Thanks for tuning in to the podcast! I hope you enjoy this information. If you feel inspired to offer a little support go to Patreon.com/eolu to join the community!

Until next week remember:

Face Your Fears.               BE Ready.               Love Your Life!!!

Ep. 56 End-of-Life Book Showcase!

In this episode Dr. Karen Wyatt highlights several excellent books about the end of life that have been sent to her by their authors. If you have considered starting an end-of-life book club (as mentioned in Episode 33) you’ll find many great books to choose from in this list. Here are the book titles and authors, along with links for learning more or purchasing the books:

  • “My Voice, My Choice: A Practical Guide to Writing a Meaningful Healthcare Directive”; by Anne Elizabeth Denny; www.anneelizabethdenny.com
  • “LastingMatters Organizer: Where Loved Ones Find What Matters Most”; by Barbara Bates Sedoric: www.lastingmatters.com
  • “Caring for Dying Loved Ones: A Helpful Guide for Families and Friends”; by Joanna Lillian Brown; www.caringfordyinglovedones.com
  • “Caregivers: Angels Without Wings”; by Peg Crandall; Link to Amazon.com
  • “Changing the Way We Die: Compassionate End-of-Life Care and the Hospice Movement”; by Fran Smith and Sheila Himmel; Link to Amazon.com
  • “Encountering the Edge: What People Told Me Before They Died”; by Karen B. Kaplan; Link to Amazon.com
  • “Spirit Matters: How to Remain Fully Alive with a Life-Limiting Illness”; by Judy Flickinger; www.judyflickinger.com
  • “Spiritual Perspectives on Death & Dying”; by Bernice H. Hill, PhD; Link to Amazon.com
  • “Living Consciously, Dying Gracefully: A Journey with Cancer and Beyond”; by Nancy Manahan and Becky Bohan; Link to Amazon.com
  • “Daddy this is it. Being-with My Dying Dad”; by Julie Saeger Nierenberg; Link to Amazon.com
  • “Leaning into Love: A Spiritual Journey Through Grief”; by Elaine Mansfield; www.elainemansfield.com
  • “Laughing in a Waterfall: A Mother’s Memoir”; by Marianne Dietzel; Link to Amazon.com
  • “Turn Right, Good Moon: Conversations With a Dying Mother”; by L. E. Moore; www.turnrightgoodmoon.com
  • “She Would Draw Flowers: Poems from a Young Artist Awakening to Life, Love and Death”; by Kirsten Savitri Bergh; Link to Amazon.com
  • “And Now, Still: Grave & Goofy Poems and a Bit of Prose”; by Reggie Marra; www.reggiemarra.com
  • “Facing Darkness, Finding Light: Life After Suicide”; by Steffany Barton, RN; Link to Amazon.com
  • “What to Do When You’re Dead: A Former Atheist Interviews the Source of Infinite Being”; by Sondra Sneed; Link to Amazon.com

I hope you’ll check out these amazing and inspirational books and include some of them in your book club or add them to your library!

 

Ep. 55 How to Talk to Your Healthcare Provider About Your End-of-Life Wishes

Today Dr. Karen Wyatt discusses how to start an end-of-life planning conversation with your healthcare provider. She suggests the following:

  • Don’t wait for your provider to bring it up – initiate the conversation yourself
  • Schedule a dedicated appointment for advance care planning rather than trying to add it on to a regular visit or wellness exam
  • Be prepared by completing either The Conversation Starter Kit or the SMART Decisions Challenge before your visit
  • Choose your healthcare proxy in advance and make sure that person is willing to serve this role on your behalf
  • Print your paperwork in advance by going to caring info.org and downloading the forms needed for your state(s) of residence
  • Bring along a list of your questions
  • Return for a follow-up conversation in 2-4 weeks. Then plan to revisit your decisions every 5 years or whenever your health status changes.

Remember to subscribe to End-of-Life University interview series on the website.

If you’d like to support EOLU with a small donation go to Patreon.com/eolu.

Tune in next week and until then:

Face Your Fears.           BE Ready.            Love Your Life.

Ep. 54 Film: Love in Our Own Time with Tom Murray

Join Dr. Karen Wyatt and her guest Tom Murray, director of the beautiful feature-length documentary Love in Our Own TimeThey will discuss the making of this film, which follows the lives of ordinary Australians as they face the big transitions of life: birth and death. “Love in Our Own Time is a film that speaks directly to its audience about the nature of life and death. It is a journey to the heart of what it is to be human that gives us all pause to question the lives we lead.” (from the film’s synopsis) Tom Murray reveals his own inspirations for creating the film and the transformation he experienced during the process.

In this interview you will learn:

  • How Tom Murray was inspired to create this film after living and working amongst the Yolngu Aboriginal people
  • How this film is being used in medical education settings to increase awareness about the end-of-life
  • How you might arrange a screening of Love in Our Own Time for your own community

Subscribe to End-of-Life University at http://www.eoluniversity.com so you can receive notification of all the fantastic new interviews on end-of-life issues.

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