EOLPodcast, Tragedy

Ep. 170 Learn to Pause in Times of Tragedy with Jonathan Bartels RN

PodcastPause

 

 

JonathanBartels
Jonathan Bartels RN

As an RN in the emergency room, Jonathan Bartels had seen his share of trauma and tragedy and he understood the toll it takes when grief and loss are unacknowledged and stifled. But one day, at the moment of a patient’s death following a failed resuscitation attempt, he received an inspiration to “Pause,” which would soon spread to hospitals around the world. He shares that story with us today.

Learn more about The Medical Pause here.

Other links from this episode:

Being With Dying Training

Schwartz Center for Compassionate Healthcare

Patreon.com/eolu (all donations welcome!!)

Leave a review on iTunes

Ineffability means to lose words in the experience of the moment. Silence captures the moment more than any words” – Jonathan Bartels

Included in this interview:

  • How Jonathan was inspired to institute the first Medical Pause
  • Why we need to pause in times of tragedy
  • How to implement The Medical Pause in any setting
  • Best practices for The Medical Pause
    • Ask permission of people in attendance
    • Don’t proselytize
    • Allow people to opt out
    • Allow it spread organically rather than as a policy
  • What it takes to start a movement that is changing the healthcare system
    • Timing
    • Willingness to stand up for what’s right
    • Pure and positive motivations to help others
    • Willingness to fail
    • Courage and vision
  • How to “burn brighter rather than burning out”
    • Journal
    • Physical activity
    • Mindfulness
    • Healthy diet
    • Supportive practices

Tune in next week for a new episode! Until then …

Face Your Fear           BE Ready           Love Your Life

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EOLPodcast, Tragedy

Ep. 169 How to Find GRATITUDE in Times of Suffering

PodcastGratitude

 

 

phoenixToday, as we prepare to celebrate the Thanksgiving holiday in the U.S. I share some thoughts about gratitude and how to practice it even when we are suffering. The image of a phoenix rising from the ashes is an especially poignant symbol as thousands of people struggle to recover from devastating fires in California. Sending much love this week to all who are dealing with trauma and tragedy as we sit down to offer thanks for our blessings.

ANNOUNCEMENTS:

Meet me at EndWell Symposium on December 6, 2018 in San Francisco! Get in touch with me (karen@karenwyattmd.com) if you’d like to connect during the symposium!

A HUGE THANK YOU to my latest patron on Patreon.com/eolu, Nancy Walker,  and to all of my contributorsYour support means everything to me and I am grateful that you are part of my work. Join the team at Patreon.com/eolu.

PatreonTY

FEATURE PRESENTATION:

The discussion includes:

  • The benefits of practicing gratitude (read studies at www.gratefulness.org.)
    • Improves relationships
    • Improves physical health
    • Increases wellbeing and happiness
    • Increases empathy and compassion
    • Decreases aggression
    • Improves sleep
    • Increases self-esteem
    • Increases resilience
  • Why the ego struggles with gratitude
  • The negativity bias of the brain
  • How to intentionally focus on the positive
  • Find the hidden gem or miracle within each difficulty
  • Why you only need a little gratitude to make a difference
  • How to keep a gratitude journal
  • The Gratitude Mantra

Wishing you and yours a blessed Thanksgiving with abundant reasons to be grateful this year!

Tune in next week for a brand new episode. If you enjoy this content please share it with others and leave a review on iTunes! (THANK YOU!!)

Until next week ….

Face Your Fear          BE Ready           Love Your Life

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EOLPodcast, Spirituality, Tragedy

Ep. 168 How to Find COMPASSION in Times of Suffering

 

PodcastCompassion

 

 

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Photo credit: @NBCLA

Today I’ll share some thoughts on recent tragedies that have occurred near me this week, the meaning of compassion, and why at times we humans are not able to feel compassion for others when they suffer. Then I’ll share the words that have guided me to experience deeper compassion for many years. Download a copy of the Lovingkindness Blessing below:

Lovingkindness Blessing

 

ANNOUNCEMENTS:

DDCteachTune in to a series of brief webinars by 5 new teachers of death and dying classes. They share excerpts from their courses that we hope will inspire you to want to teach your own community class based on your knowledge, experience and passion for end-of-life issues. Click here to watch the webinars.

Teach about Death and #ChangetheWorld!

To further your own end-of-life education check out the Integrative Thanatology Certificate Program at the Open Center’s Art of Dying Institute at this link: https://www.opencenter.org/art-of-dying-intergrative-thanatology

FEATURE PRESENTATION:

In this episode I discuss:

  • Why we sometimes react negatively toward others who are suffering rather than with compassion
  • The meaning of the word compassion (“to suffer with”)
  • Why the ego rejects and judges the suffering of others
  • Why we must grow spiritually before we can experience genuine compassion for others
  • The lotus blossom as a symbol of compassion and spiritual growth
  • How the 5 verses of the Lovingkindness Blessing signify the necessary steps toward sharing genuine compassion during times of suffering:
    • May I be at peace
    • May my heart remain open
    • May I realize the beauty of my own true nature
    • May I be healed
    • May I be a source of healing for this world

You can help support this podcast and the EOLU Interview Series in 3 ways (THANK YOU in advance!):

  1. Tell other people about it who might enjoy this content
  2. Leave a review on iTunes
  3. Make a small donation ($1 per month) on my page at Patreon.com/eolu

Until next week …

Face Your Fear          BE Ready         Love Your Life

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EOLPodcast, Grief Travel, Tragedy

Ep. 166 Grief Travel: Lessons from Spain

PodcastSpainpic

 

 

IMG_6174In this episode I’m back from my travels in Spain and share some stories from my trip. When I travel I focus on learning how other cultures have experienced loss and grief throughout history in order to form a deeper connection with all people everywhere. Grief is the great connector of humankind as a universal experience.

(Photo: Tomb of Christopher Columbus in the Cathedral of Sevilla. For more photos go to my Instagram page.

ANNOUNCEMENTS:

bartonwebinarThere will be a webinar with Jane Barton on developing resilience in later life titled “Bridge Time: Dealing with the Consequences of Change” on Tuesday October 30th.

Sign up here to listen live or get the replay after the broadcast.

 

Patreonbecome2xThis podcast is supported through generous donations on my page at Patreon.com/eolu. This week I’m sending a HUGE THANK YOU to the following new patrons: Tawnya Musser, Julie, Rowena Wallen, Issac Seigel, and Alicia Coleman. If you’d like to join the team and contribute to this work you can learn more and sign up at Patreon.com/eolu.

FEATURE PRESENTATION:

Here are some highlights of my travels in Spain:

  • In Madrid I learned about the terrorist attacks on commuter trains coming into Atocha Station that took place on 3/11/2004, which reminded me of 9/11 in the U.S. I understood the grief, panic and horror that struck all of Spain that day as they experienced the overwhelming shock of such an attack on their own soil.guernica
  • I saw Picasso’s painting “Guernica” at the Reina Sofia Museum in Madrid and learned about the tragic bombing of the Basque town of Guernica during the Spanish Civil War in 1937. The painting is massive and very moving to behold in real life as it portrays the anguish of that awful day.
  • Through travels in Toledo and the region of Andalusia I learned about the convivencia, a period of relative tolerance between Muslims, Jews and Christians who lived as neighbors during the 700-year Muslim rule. They shared literature, poetry, architecture, design, agricultural and irrigation methods, and advances in science, astrology and medicine during the Dark Ages when the rest of Europe was in a time of regression. fullsizeoutput_1966
  • I visited La Mezquita in Cordoba, once the largest mosque in the world in the middle of which a huge cathedral was built after Catholics reclaimed the city from Muslim rule. The mosque is extraordinarily beautiful inside and much of the architecture was preserved and incorporated into the cathedral. The red and white arches of the mosque can be seen in the header of this post.IMG_4437
  • In Granada we visited the Alhambra, a gorgeous palace and walled city from the Nasrid dynasty that was surrendered to the Catholic monarchs of Spain, Ferdinand and Isabella, in 1492 to finally end all Muslim rule in the country. The beauty of the palace has been preserved as an example of Moorish architecture that is also seen in many Jewish and Christian buildings from that time.IMG_4164
  • Finally we saw many monuments to Christopher Columbus throughout Spain and were there to witness the celebration of Columbus Day on October 12th, which is now being called Indigenous People’s Day in many places here in the U.S. It was fascinating to view Columbus’ exploration through the eyes of the “colonizing country” and compare it to the experience of the “colonized” in this country. Columbus died in poverty and disgrace after never finding the passage to India he was seeking, not knowing the legacy he was leaving behind (which is now tarnished from our perspective in the U.S.)

In conclusion, travel is a fascinating way to connect with people of different culture, ethnicity, race,  and religion and  has the power to bring us back to a place of convivencia, where we can live together in tolerance, even though we have different views. We share our humanity, our mortality and our grief as one people living on one planet.

Remember there will be a new episode every Monday! If you enjoy this content please share it with others and consider leaving a review on iTunes.

Until next time …

Face Your Fear            BE Ready            Love Your Life

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End of Life, EOLPodcast, Grief, Tragedy

Ep. 143 Lessons from “the Other Side” Through Channeled Writing with Matt McKay PhD

Learn how a skeptical psychologist began receiving messages through channeled writing from his son after his tragic death.

PodcastMcKay

MattMcKay2In this episode I share an interview with psychologist Matt McKay PhD who tells how he began receiving messages after his son’s death that taught him about spirituality here in this life and in the afterlife. Matt shares his suggestions for communicating with those “on the other side.”

Click here to learn more about Dr. McKay’s work and his book Seeking Jordan: How I Learned the Truth About Death and the Invisible Universe.

ANNOUNCEMENTS:

wrmflatcoverThis episode is sponsored by my book: What Really Matters: 7 Lessons for Living from the Stories of the Dying. I share with you how I got inspired to write the book, why it took a long time to finally create it, and what you can learn from reading this book.

You can get it here on Amazon in print, ebook and audiobook formats!

THANK YOU to all of my current patrons on Patreon.com/eolu! Your support means everything to me! If you’d like to join in and help support this podcast for as little as $1 per month go to Patreon.com/eolu and check it out!

FEATURE PRESENTATION:

In this presentation clinical psychologist Dr. Matthew McKay will share the story of his son Jordan and how he sought to connect with Jordan after his death. He will teach us how to communicate with our own loved ones who have died.

Dr. McKay offers these suggestions for starting your own practice of channeled writing:

  • Get grounded and centered
  • Have a physical object that connects you to your loved one
  • Use a candle or other visible object to focus your gaze
  • Become more receptive bu using mindfulness, self-hypnosis, breathing techniques
  • Have a special notebook handy
  • Write down a question for the loved one you would like to communicate with
  • Wait for words to form in your mind and immediately write down anything that arises, without judging or questioning it
  • Acknowledge your doubt but don’t be paralyzed by it

Remember there will be a new episode every Monday! If you enjoy this content please consider leaving a review on iTunes and sharing it with others.

Until next week …

Face Your Fear         BE Ready         Love Your Life

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End of Life, EOLPodcast, Grief, Hospice, Tragedy

Ep. 122 Top 10 “Game Changers” of 2017 for the Death-Positive Movement

Learn about my Top-10 picks for people, events and trends that have changed the end-of-life movement in 2017.

PodcastGameChangers

2017In this final episode of 2017 I take a look back at the previous year and share my thoughts on some of the events and people that I believe will have a big impact on how our society deals with the end of life.

Happy Holidays!

ANNOUNCEMENTS:

Patreonbecome2xYou can support this podcast by making a small donation of $1 or $2 at Patreon.com/eolu.

 

FEATURE PRESENTATION:

Here are my picks for the 2017 Game Changers in the Death-Positive Movement:

  • The documentary film “Extremis” was nominated for an Academy Award for Best Documentary Short. The film was also picked up by Netflix in 2016. It is a powerful depiction of end-of-life care in the ICU staffed by Dr. Jessica Zitter, which should serve as a wake-up call to people about the need to do end-of-life planning before a healthcare crisis occurs.
  • Dr. Jessica Zitter’s book Extreme Measures was also released this year. In addition she wrote an article for the N.Y. Times (“First Sex Ed Then Death Ed”) calling for death education classes for all high school students. This novel idea has the potential to change our society’s perception of death and dying by introducing the subject to young people. Dr. Zitter is truly a game changer!
  • In March and May of 2017 the organization The Dinner Party (a movement to provide community for millennials dealing with loss) convened meetings with business leaders from some prominent US corporations to discuss loss and the workplace. They emphasized the importance of developing workplace policies and protocols for managing bereaved employees and offering them assistance. These conversations are just the first step in changing how grief is recognized and supported in the workplace rather than being ignored.
  • In April 2017 the 1st International Death Doula Training was held in Maui for the purpose of teaching people from around the globe to serve others as death doulas. This event was a game changer because it validated the death doula movement, increased the number of qualified doulas who can serve their communities, and provided a networking platform for death workers, which helped strengthen and expand the movement. The 2nd International training will take place in 2018!
  • Also in Apri the National Rx Drug Abuse and Heroin Summit was held to address the epidemic of opioid addiction in this country. Measures have been taken to limit the number of pain pills that can be prescribed and dispensed at one time. This is an important and game-changing step to deal with the overwhelming public crisis of opioid deaths but caution is necessary. We must be vigilant to ensure that all hospice and palliative care patients have access to the medications they need for pain and symptom management.
  • On June 27, 2017 Jon Underwood, founder of Death Cafe, died suddenly and unexpectedly at a young age. Jon has been a game changer from the beginning by creating the Death Cafe platform for conversations about death that has spread around the world. But the tragedy of his death is also a potential game changer because of the powerful legacy Jon leaves behind and because of the potential for tragedy to inspire growth, creativity and healing. The entire death-positive movement is indebted to Jon for his inspiring and gentle leadership and may his death be a catalyst for transformation.
  • In July a new smart phone app named WeCroak was introduced. This app is a game changer because it helps people to think about death in a positive manner  by sending reminders (“You will die one day”) and quotes on their phones 5 times a day. Technology has the potential to revolutionize our approach to death and dying and this simple $.99 app is just one small step toward the change that is needed.
  • The film Coco was released in the US by Disney and Pixar in November. Coco tells the story of a 12-year old boy who is transported to the land of the dead on Dia de los Muertos. There he receives help from his departed great-great grandfather to return to his family in the land of the living. The film depicts joyful skeletons who dance and sing and it portrays a positive image of life after death. While it is a children’s movie Coco has a powerful message for adults and is likely to stimulate much conversation in families about death and departed ancestors. It is exciting to see Hollywood begin to address death in a positive manner and this film is a game changer that will hopefully lead to more such productions in the future.
  • In December the first EndWell Symposium, created by Dr. Shoshana Ungerleider and her foundation, was held in San Francisco. This groundbreaking symposium brought together thought leaders from healthcare, design and technology to share ideas on how to improve end-of-life care. The synergy of this collaborative event will have a ripple effect across the country and should lead to innovation and creativity around death and dying in the months to come. Dr. Ungerleider is a game changer for her forward-thinking generosity and ingenuity!
  • Also in December the Northpoint Expeditionary Learning Academy in Prescott AZ held a class for students in grades 9-12 on “Death and the Meaning of Life.”  School Director Charles Mentken taught the class, which provided a comprehensive look at death and dying from various cultural and religious perspectives. The elective class also introduced the students to options for hospice and palliative care, death doulas, home funerals, cremation, and traditional funeral and  burial services. This may be the first “pilot project” course of the type Dr. Jessica Zitter called for in her NY Times article and it is definitely a game changer. The students in the course have reported that their attitudes and fears about death have been totally transformed, as well as their approach to life, as a result of what they learned in the class. (I’ll be featuring an interview with Charles Mentken and 3 of his students on the End-of-Life University Interview Series in early 2018. Sign up if you’re not already on the list!)

I hope your holiday celebrations have been filled with joy and light and that you feel ready to embark on a brand new year next week! There will be a new episode on New Year’s Day where I will share my “wish list” for 2018.

Until then remember to ….

Face Your Fear            BE Ready           Love Your Life

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End of Life, EOLPodcast, Grief, Grief Travel, Tragedy

Ep. 118 How Travel Helped My Grief

Learn how travel can provide a “safe container” for healing grief and loss.

PodcastGriefTravel

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In this episode I’ll share my own insights into how the experience of travel can help with the process of grief. This is also the subject of the new book I’m writing (I did research for it on my recent trip to Italy) … I’ll share a brief overview here!

You can check out all of my Italy photos on Instagram!

ANNOUNCEMENTS:

virtualdeathcafecroppedEach month I host a “Virtual Death Cafe” with fascinating conversations about death, grief and the end of life. Anyone can join by telephone or online. You can learn more about it at www.eoluniversity.com/death-cafe.

Also, if you missed Death Expo earlier this month you can still access the replays at this link: www.eoluniversity.com/de17speakers.

Patreonbecome2xThis podcast is supported through the generous donations of my patrons on Patreon.com/eolu. I’m sending a HUGE THANK YOU to all of my current supporters – your support makes a big difference! Join the fun for just $1 or $2 per month and you’ll receive the “Patrons Only” Q&A recording each month (Hospice Happy Hour!) Go to Patreon.com/eolu to learn more and sign up!

FEATURE PRESENTATION:

During several of my travel experiences in the past I have been dealing with grief and have found the process of travel to be helpful. On one trip to Italy, my husband and I learned of the death of our brother-in-law on the day we arrived in Venice. Unable to cancel the rest of our trip and return home immediately, which we wanted to do, we stumbled through the remainder of the vacation and managed to make peace with our pain.

Here are some of my “takeaways” about how travel can help with grief:

  • Permission to wander aimlessly. On our Venice trip we canceled all of our sightseeing plans and activities. We started each day with a totally clean slate and just wandered the streets and canals of the city all day long. By following our intuition and our broken hearts we were able to enter into our grief without distraction or attachment. Had we been at home with family we would have felt obligated to “do something” and “be somewhere” but because we were traveling we were free of all expectations.
  • Seeing the big picture. Because we were freed up from the details of our daily life at home, we found more space to explore grief from a “trans-personal” perspective, as something bigger than just our own individual lives. Experiencing grief in another country allowed us to:
    • Recognize that all people, everywhere, experience the death of loved ones. Our mortality and the grief it causes us is the interconnecting thread that binds us to all of humanity.
    • Go deep into history. By visiting ancient ruins we can see that all of humankind, throughout history has dealt with the pain of loss and struggled to make peace with death. Our experience of grief is just one part of a vast “whole” picture of human loss.
  • Surrendering to grief to find joy within. As travelers “stuck” in another country even though we wanted to be home, we had no choice but to surrender to the pain that engulfed us. When we allowed grief to find a home within (and even “became” a living embodiment of grief) we also discovered a startling capacity for simple joy over the beauty of being alive. I’ve written this before: suffering hollows us out so that we can contain an even greater measure of joy … and also love.
  • Understanding impermanence. Strolling through cemeteries, relics and ruined structures of the past illustrated to me perfectly that everything that exists in the physical realm is impermanent and will one day dissolve away. Only love and the energy of life persist eternally. And it is the depth of the love we experience for others that causes the magnitude of pain we feel upon their deaths. Grief is one of the visible manifestations of love in the physical realm.
  • Learning how to navigate in unfamiliar territory. On our “grief trip” in Venice we simply wandered every day until we were hopelessly lost. We took in everything around us along the way–noticing all the colors and sounds and fragrances of life. And when we felt ready to return “home” we studied our maps to figure out where we were and to slowly find our way back to more familiar territory. This skill of navigating in the unknown will prove to be very helpful to us throughout life and especially during our own dying process as we struggle to get back to a home we can’t remember.

I hope you will take the opportunity to travel some day, even when you are experiencing grief, to experience the profound benefits it can offer!

Tune in every Monday for a new episode of the podcast! If you enjoy this content, please share it with others and leave a review on iTunes! Until next week remember:

Face Your Fear            BE Ready            Love Your Life

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EOLPodcast, Grief, Spirituality, Tragedy

Ep. 107 Where Is God When Tragedy Strikes?

This is a special episode on the anniversary of the terrorist attacks of 9/11/2001 and in recognition of the recent natural disasters, hurricanes Harvey and Irma and the wildfires that rage throughout the Western United States.

Podcast911

fireman911-100720_640In this brief episode I share an essay I wrote on the 10th anniversary of the 9/11 attacks that is still relevant today. Join me in sending prayers of light and love to all who have been affected by the tragedy of  9/11,  by the recent natural disasters around the planet and by war and famine wherever they occur.

Blessings to all the first responders who risk their own lives to provide safety for others during times of tragedy.

 

ANNOUNCEMENTS:

OLYMPUS DIGITAL CAMERAMy trip to Italy is just around the corner! Check out my travel plans on Pinterest or follow my journey on Instagram and Facebook! I’ll be doing research for a new book on grief – you can read my latest blogs (on grief  and other subjects) at eoluniversityblog.com!

Patreonbecome2xA huge THANK YOU to my latest supporters on Patreon.com/eolu: Marzette Ellis and Rwa Alex!! I’m very grateful for your contributions – you keep me inspired to continue this podcast and the End-of-Life University Interview Series. You can become a patron too by donating just $1 or $2 per month at Patreon.com/eolu!

FEATURED PRESENTATION:

The following is an essay I wrote in 2011 on the 10th anniversary of the 9/11 attacks:

Where Was God On 9/11?

by Karen Wyatt MD

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As we look back to that fateful September day a decade ago that changed our world forever, each of us is able to recall exactly where we were and what we were doing when the tragedy unfolded. Indelibly etched upon our souls is the memory of the Twin Towers crashing to the ground while we were experiencing within us the disintegration of the twin beliefs behind our quintessential American swagger, that this country is infallible and invincible.

In the days following that Tuesday morning, as I attended to my patients at an urgent care clinic in the resort town of Breckenridge, Colorado, nearly every visit focused in some way on the horrific scenes of 9/11. Many patients were visitors to our area, many were suffering with symptoms of anxiety and stress, and nearly all of them had some personal connection to the tragedy, whether through a friend, relative, co-worker or acquaintance.

During those visits the same questions seemed to arise over and over again, “Where was God on 9/11?” and “How could God let this happen to us?” A few people told stories they had heard of miraculous rescues that had taken place or of some fortunate individual who had dodged fate by missing the bus or calling in sick to work that day. Those few were able to see the hand of God in these miracles and felt their faith bolstered by them. But many of my patients were disheartened and lost in doubt as the God they had believed in and trusted had utterly failed them.

The destruction that took place on 9/11 was unprecedented in the history of our young nation, unlike the many developed civilizations of the world that have survived brutal and devastating wars, fires, plagues, invasions and attacks throughout their long existences. Our country, with youthful idealism, has been founded upon the principle of religious freedom and has, until 9/11, enjoyed the illusion of a special contract with God, declared in writing on even the currency we spend.

“In God we trusted,” is now the slogan that describes the attitude of the disillusioned. God let US down: the special ones who established a new country to ensure that God could be freely worshipped by all and who believed that God, in return, would favor us over every other society. But 9/11 proved to us that we’re not really special or favored at all. In fact we are subject to the same laws of nature and the universe and mankind that govern all of creation.

What we actually lost on 9/11 was our illusion of a god who would choose one group of  children over another, who would control the unfolding of history to ensure that we would always get what we want, or who would magically empower one society to hold dominion over others. We lost our childish and immature notion that God would swoop down and shield us from harm because we somehow deserve protection more than any other society on the planet.

However the tragic events of 9/11 and the difficult decade that has followed can serve as an initiation of sorts, an opportunity for our society to awaken into a more mature relationship with God, the Creator of All. In this post-traumatic state of heightened awareness we can now relate to the suffering of all of mankind with less swagger and more sensitivity, less entitlement and more empathy. While we can still celebrate our freedom we will do so now with the solemn knowledge that the expression of true liberty requires responsibility toward others and the planet; we can no longer think or feel or act as if we matter more than everything else.

And so, the question remains, where was God on 9/11? God was … in every ash and cinder, in every teardrop, in every piece of twisted metal, in every broken heart, in every outstretched hand, in every final breath, in every lit candle, in every moment of stunned silence, in every desperate prayer, in every word of doubt and disbelief, in every shout of anger, in every act of bravery, in every cry of fear. On that day, as on every other day, God the Creator permeated everything, held the fragile strands of our existence and wove them gently into the unseen, yet perfect, tapestry of the Universe.

Remember that in the midst of tragedy we cannot see the tapestry that we are part of – we cannot perceive the design or the beauty into which our lives have been woven. Stay strong and know that you are surrounded by light and love!

Until next week:

Face Your Fears.                        BE Ready.                      Love Your Life.

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End of Life, EOLPodcast, Grief, Tragedy

Ep. 101 When Your Child Has a Life-Limiting Illness with Blyth Lord

Learn how Blyth Lord coped with the illness and death of her young daughter and went on to create the Courageous Parents Network.

PodcastLord

Blyth LordIn this episode I share an interview with Blyth Lord whose daughter Cameron died before the age of two of Tay-Sachs disease, a rare genetic disorder. She describes how she coped with her grief and established a non-profit to help other parents who are caring for children with life-limiting illness.

Learn more at www.CourageousParentsNetwork.org

 

ANNOUNCEMENT:

An Evening withDr. Ira Byock

On the evening of August 21st I’ll share a conversation with hospice and palliative care physician Dr. Ira Byock about the 20th Anniversary of his groundbreaking book Dying Well. Join us for this LIVE event where you will be able to chat with Dr. Byock and ask questions about his books and his work. Let’s show our gratitude for his dedication to improving the way we care for people at the end of life. Learn more and register here. (It’s free and you’ll receive the replay if you can’t join us on the 21st.)

Patreonbecome2xThis podcast is supported through the generous donations of “patrons” who chip in $1 or $2 per month to help cover the costs of production. A HUGE thank you to all of you who are helping out! Our next Hospice Happy Hour will take place on Friday August 25th (you’ll receive all the information by email.) If you’d like to become a donor go to Patreon.com/eolu to learn more!

I chose to share today’s interview because of the very recent death of Charlie Gard, an 11-month old boy in England with a rare, inherited mitochondrial disease. His terminal condition sparked a controversy that spread around the world when the hospital providing his care proposed that Charlie’s life support be terminated. Even the Pope and President Trump weighed in on the issue that went to a high court to decide little Charlie’s fate. Ultimately his parents yielded to the court’s decision and Charlie died on Friday July 28th.

This heartbreaking story points out how nearly impossible it can be for parents to make life-and-death decisions for their children. In this interview my guest Blyth Lord experienced a similar tragic situation when her baby daughter was diagnosed with Tay-Sachs disease, a rare genetic disorder. Blyth shares how she coped with the diagnosis and the remaining months of her daughter’s life, as well as her subsequent grief.

Blyth went on to found the Courageous Parents Network and to contribute to the Pediatric Starter Kit for the Conversation Project. You’ll learn:

  • What factors are most helpful to families coping with the devastating loss of a child.
  • The benefits of Pediatric Palliative Care from a parent’s perspective.
  • How the Courageous Parents Network is offering support to parents caring for terminally ill children.
  • How the Pediatric Starter Kit from The Conversation Project is helping parents have important conversations with their ill children.

Blyth Lord is the founder and Executive Director of Courageous Parents Network, a nonprofit focused on improving the experience of parents caring for children with life-limiting illness through education, advocacy and parent-to-parent support. Blyth is also the Executive Director of the Cameron and Hayden Lord Foundation, a small family grant-making foundation whose mission is to advance pediatric palliative care in the United States, as well as fund research of therapies for lysosomal storage diseases. Blyth’s daughter, Cameron, and nephew, Hayden, died of Tay-Sachs disease in 2001. In the years following, Blyth has promoted the needs of families caring for children with serious illness and how providers can best meet these needs. Blyth is also co-chair of the Parent Advisory Group for the AAP’s Section on Hospice and Palliative Medicine.

Blyth sits on the board of National Tay-Sachs and Allied Disease and on the board of The Children’s Room, a bereavement support program for young families who have lost parents/siblings/children.

Websites: http://courageousparentsnetwork.org

                http://theconversationproject.org

Tune in next week for another episode and until then ….

Face Your Fear.                     BE Ready.                    Love Your Life.

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EOLPodcast, Grief, Spirituality, Tragedy

Ep. 93 Treating the Trauma of War: Psychiatry Meets Shamanism with Jeff Black MD

Find out how a psychiatrist is successfully helping veterans with unhealed trauma by using alternative practices.

 

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ALBlackcropped In this episode I am featuring an interview from the Death & Afterlife Summit with Dr. Jeff Black, a psychiatrist who uses unconventional methods to successfully treat trauma in veterans. A few clips of this interview were featured in the Suicide Series and I wanted to share the entire interview with you.

 

As a follow-up to the Suicide Series I want to further address the issue of suicide in veterans: at this time 22 veterans take their own lives every day. This statistic is a heartbreaking tragedy and it’s time we work hard to help heal the emotional and spiritual burden that veterans bring home from war. Dr. Black and others describe the aftermath of trauma as “soul loss” and he uses shamanic rituals to help his patients recover the pieces of their souls that have been taken away by war.

In Episode 92 I performed a Fire Ceremony for my father to heal his wounds and to release my grief. This was recommended to me by Dr. Black and during the ceremony I felt the power of ritual to transform our losses into grace. I hope you enjoy this conversation with Dr. Jeff Black.

Tune in every Monday for a new episode! Until the next time …

Face Your Fears.                       BE Ready.                      Love Your Life.

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EOLPodcast, Tragedy

Ep. 84 The One Washcloth Project with Rochelle Martin RN

Learn how 3 nurses started a simple project to help families traumatized by sudden, unexpected death in the E.R.

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OLYMPUS DIGITAL CAMERAThis episode will feature my interview with Rochelle Martin, an E.R. nurse who started the One Washcloth Project to help families care for their loved ones after an unexpected death in the E.R. You’ll be touched to hear how this simple gesture can change the experience of traumatic death for people in emergency settings.

Learn more at onewashcloth.org

ANNOUNCEMENTS:

Suicideblog_On April 10th  an 8-part series will begin on this podcast titled Suicide: Surviving the Aftermath. Each episode will focus on my own personal journey of healing after my father’s suicide death.

I will share my process of learning about my Dad and the factors in his life that led to his death, while also portraying the grief and guilt I suffered as a survivor of suicide. My goal is to share hope with those who are currently on this journey of grief.

For anyone who is currently experiencing a crisis and feeling hopeless the National Suicide Prevention Lifeline provides free and confidential support 24/7.

Call 1-800-273-8255 or Text HELLO to 741-741.

Click here to talk to someone now.

supportonpatreon-e1412764908776You can help support this podcast and the End-of-Life University Interview Series by making a small monthly donation at www.Patreon.com/eolu. To thank you for your donation I’ll promote your end-of-life related website, business, or organization on this podcast. Thank you to my newest supporter: Phyllis Shacter, author of the new book Choosing to Die about her husband’s choice for VSED at the end of his life. Learn more at her website PhyllisShacter.com. Thanks also to all of the patrons who have offered your support over the past year!

THE ONE WASHCLOTH PROJECT:

Rochelle Martin RN, death midwife and emergency room nurse, and Dr. Wyatt discuss the One Washcloth Project, which Rochelle co-founded to offer compassion and support to families who have suffered an unexpected loss of a loved one in the emergency room. They will talk about the challenges for both staff and family members of coping with death in the ER setting.

In this interview you will learn:

  • how the One Washcloth Initiative hopes to help families say goodbye to loved ones who have died in healthcare settings
  • about the challenges facing ER staff as they deal with traumatic deaths
  • what changes are needed in the medical system to improve the care offered to dying patients and their families in the ER and hospital.

Rochelle Martin is a Registered Nurse with specialty certification in Psychiatric and Mental Health Nursing. She holds a Master of Divinity degree from the University of Toronto, and has experience in emergency and acute psychiatry, palliative care, and spiritual care.

Recently certified as an End-of-Life and Home Funeral-Care Guide (Beyond Hospice, 2012), most of the families Rochelle supports are saying goodbye to loved ones immediately following unexpected, often traumatic deaths in ER. She considers it a great privilege to be with families in these raw, intense moments, when there is little to offer but compassionate presence.

Currently collaborating on a number of death midwifery-related projects, Rochelle is working to establish a Canadian national community of practice, has co-founded the One Washcloth initiative, and serves on the Education Committee of the National Home Funeral Alliance. Her local efforts include leading after-death care workshops for healthcare, religious, and community groups, and exploring a conservation burial partnership in Hamilton, Ontario.

Enjoy this special interview! Remember to tune in starting next week for the 8-part series Suicide: Surviving the Aftermath. Until then:

Face Your Fears.                    BE Ready.                  Love Your Life.

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EOLPodcast, Tragedy

Ep. 61 Reflections on Mortality From My Travels in France

 

In this episode Dr. Wyatt begins by talking about Death Expo, a free online educational event, which is coming up on November 10-13, 2016! She describes the 12 speakers who will be presenting during the event. To sign up go to:

http://DeathExpo.com

She then thanks her supporters for making donations at Patreon.com/eolu to help keep EOLU Interview Series and Podcast on the air!

Dr. Wyatt describes her recent trip to France and some profound insights that she experienced regarding death and dying:

  • the Battle of Normandy during WW2
  • Omaha Beach and the sacrifices made there
  • the American Cemetery at Omaha Beach
  • Pere Lachaise Cemetery in Paris and thoughts about mortality and legacy

Listen to get inspired!

Sign up for Death Expo, tune in every Monday for a new episode of EOLU Podcast and remember:

Face Your Fears.                   BE Ready.                 Love Your Life.

EOLPodcast, Grief, Spirituality, Tragedy

Ep. 43 What To Do When Tragedy Strikes

 

In this episode Dr. Karen Wyatt shares her thoughts on how to cope with tragedy when you are a peripheral observer and don’t know how to help. She talks about her own feelings of helplessness after the 9/11 tragedy and shares some thoughts about specific things you can do to help you cope and find meaning after a horrific event has occurred. Her suggestions include:

  1. Give – donate blood, money, clothing, supplies, food, your time and energy–whatever might be needed most during a disaster. Contact your local Red Cross or other charitable relief organization to find what is needed and how you might be of help.
  2. Pray – even if you are not religious utilize prayer (or meditation, contemplation, or mindfulness) as a means of sending your love and light to others who are hurting right now. Attend a prayer vigil or memorial service if there is one in your area (or create one yourself.) Non-directed prayer for the good of all is more effective than directed prayer.
  3. Light a candle – Dr. Wyatt tells the story of lighting  7-day sanctuary candles after 9/11 as a symbol of shining light during a dark time.
  4. Look within – use this time of despair as an opportunity to look inside yourself and examine your own Shadow for hatred, anger and bitterness. Be inspired to heal your old wounds and help the collective Shadow heal as well.
  5. Practice compassion – work to find and express compassions for everyone involved in such a tragic incident: victims, their families and friends, the perpetrator, member of the community, state, nation, and world; and those who spread hatred instead of love.

Read the companion blog to this podcast here.

Sending you much love!!! Remember to check out the donation page at patreon.com/eolu if you’d like to support this podcast, sign up for End-of-Life University emails at eoluniversity.com, and leave reviews for this podcast on iTunes!

Blessings!!!