Learn how to make the best choice for an advocate for your end-of-life wishes.
In this episode I discuss the importance of choosing the right person to be your healthcare advocate. This might be the most important decision you will make regarding your end-of-life wishes, so choose wisely!
Learn about 10 alternative remedies that are helpful for chronic or terminal pain.
In this episode I’ll share some insights about pain management from a recent blog I wrote in response to the opioid crisis in the U.S. I’ll cover 10 alternative remedies for pain that can be used alone or in conjunction with pain medication. Read the companion blog here (includes links to sources.)
If you missed “An Evening with Ira Byock MD” you can still sign up to listen to the replay. Just click here to submit your email address and you’ll receive the link to listen.
Thanks to all of my supporters on Patreon.com/eolu who generously contribute every month to help keep this podcast and the End-of-Life University Interview Series on the air! If you’d like to become a Patron for just $1 or $2 per month go to Patreon.com/eolu and join the fun! You’ll receive access to our monthly Hospice Happy Hour Q&A session, the Top 10 Interviews from EOLU, I’ll also promote your website, business, organization, book, etc. related to the end of life on this podcast.
In personal news, I’m busy preparing for my trip to Italy where I’ll be traveling for a month and writing a new book about grief. You can check out my travel plans on my Pinterest board and follow my journey on Instagram and Facebook.
The current opioid crisis in the U.S. has reached epidemic proportions and prescription drug-related deaths now outnumber traffic fatalities and gun deaths. This crisis has been partly fueled by the pressure placed on physicians two decades ago to do a better job of treating pain. Since that time the trend has been for doctors to hand out prescriptions for powerful and addictive opioids for relatively moderate pain when those drugs should be reserved for intractable pain from serious or terminal illness.
As a response to this epidemic I discuss 10 alternative therapies which can help with pain management that can be used alone or in combination with medications. These remedies can decrease the need for drugs and will help improve wellbeing and decrease stress as well:
Exercise and stretching
Loving relationships and sexual intimacy
Prayer and meditation
Emotional Freedom Techniques (E.F.T.)
I’ll discuss each alternative along with the science that supports its use. Hopefully we can learn to manage pain in ways that support overall health of the whole person.
Tune in next week for another episode! Until then …
Learn the myths and facts about Cardiopulmonary Resuscitation.
In this episode I’ll discuss the misunderstandings that exist in our society about CPR, primarily due to the way it is portrayed in movies and on television programs, like House and ER. It’s important to know the truth about CPR in order to make the best decisions for our future healthcare.
Be sure to sign up for “An Evening with Ira Byock, MD” on August 21st. Help us celebrate the 20th Anniversary of his book Dying Well. You’ll receive the replay if you can’t attend live.
You can help support this podcast by making a small donation ($1 or $2 per month) at Patreon.com/eolu. Thank you to my latest contributors Karen Greer and Barbara Richardson. I really appreciate your support and it helps me keep the podcast and the End-of-Life University Interview Series on the air! Check out Patreon.com/eolu.
This is a follow-up to the latest interview on EOL University Interview Series with Dr. Fred Mirarchi, and ER physician who has conducted the TRIAD Studies (The Realistic Interpretation of Advance Directives.) In that presentation Dr. Mirarchi shared how advance directives like Living Wills and POLST forms are often misinterpreted by healthcare providers, resulting in patients receiving less or more intervention than they specified in their paperwork. You can listen to Dr. Mirarchi’s talk here.
three myths about CPR that are commonly believed
the true statistics about the outcome of CPR
the difference between CPR and the use of AED’s (automated external defibrillator)
when CPR might be called for and when it is likely to cause more harm than good
issues to consider when completing your CPR or DNR directive
You can download the handout “Facts About CPR” from the Colorado Advance Directives Consortium by clicking below:
In this episode I’ll share my own “supernatural” dreams that occurred while I was caring for hospice patients. It’s time to come forward and talk more openly about these experiences to help shed light on the dying process and the after-death realms.
Register now for “An Evening with Ira Byock MD” which will take place on Monday August 21st at 6 pm Pacific/9 pm Eastern. We will be celebrating the 20th Anniversary of his groundbreaking book Dying Well. Dr. Byock and I will discuss the changes in palliative and hospice care that have taken place over the past 20 years and what changes still must occur to ensure that everyone has the opportunity to “die well.”
Click here to learn more and register (it’s free and you’ll receive the replay if you can’t attend live.) You’ll also receive the Dying Well Readers Discussion Guide – a very helpful resource for leading a book group or workshop on Dying Well.
This podcast is supported by generous donations to my page at Patreon.com/eolu. A HUGE “Thank you” goes out to my latest donor: Jane Duncan Rogers of BeforeIGoSolutions.com – a non-profit located in Scotland. And thanks as well to all of the other supporters who are chipping in a few $ per month to help keep the podcast and the End-of-Life University Interview Series on the air! Learn more or become a patron at Patreon.com/eolu.
I am currently planning an Autumn trip to Italy where I will be eating amazing food, viewing sacred sites, cycling, and researching a new book on grief. You can view my Pinterest board if you are interested in seeing all the locations on my “wish-list” for the trip. Feel free to make suggestions if you have a favorite spot in Italy that I shouldn’t miss! I’ll be sharing photos on Instagram and Facebook once the trip begins.
This week I attended a meeting at the IANDS 2017 Conference in Denver (International Association for Near Death Studies.) I sat together in a small circle with individuals from all around the country who have had near-death experiences and also with end-of-life caregivers who have had unusual “supernatural” experiences while working with the dying.
I was impressed by the courage of the group members who were willing to share their stories and risk being labelled as “flakey” or even crazy. And that’s what inspired me to record this podcast episode.
During my work with hospice patients on multiple occasions I experienced vivid dreams where I saw my patients in “soul form” (or a disembodied state) before they had actually died. These dreams brought me much comfort and also eased my fear of death. On some occasions I was able to share the dreams with family members who were comforted, as well, by the visions I had seen.
I have never shared these dreams publicly out of a fear of being ostracized by the medical profession. But the time for secrecy has long passed and we need transparency and truth in all matters surrounding death and dying. So I’m telling these stories in hopes that others might be inspired to talk openly about their experiences as well. If you have a story to tell but no one to share it with I hope you will email me at email@example.com and describe your experience – let’s support one another!
Tune in next week for another new episode. Until then remember ….
Learn how Blyth Lord coped with the illness and death of her young daughter and went on to create the Courageous Parents Network.
In this episode I share an interview with Blyth Lord whose daughter Cameron died before the age of two of Tay-Sachs disease, a rare genetic disorder. She describes how she coped with her grief and established a non-profit to help other parents who are caring for children with life-limiting illness.
On the evening of August 21st I’ll share a conversation with hospice and palliative care physician Dr. Ira Byock about the 20th Anniversary of his groundbreaking book Dying Well. Join us for this LIVE event where you will be able to chat with Dr. Byock and ask questions about his books and his work. Let’s show our gratitude for his dedication to improving the way we care for people at the end of life. Learn more and register here. (It’s free and you’ll receive the replay if you can’t join us on the 21st.)
This podcast is supported through the generous donations of “patrons” who chip in $1 or $2 per month to help cover the costs of production. A HUGE thank you to all of you who are helping out! Our next Hospice Happy Hour will take place on Friday August 25th (you’ll receive all the information by email.) If you’d like to become a donor go to Patreon.com/eolu to learn more!
I chose to share today’s interview because of the very recent death of Charlie Gard, an 11-month old boy in England with a rare, inherited mitochondrial disease. His terminal condition sparked a controversy that spread around the world when the hospital providing his care proposed that Charlie’s life support be terminated. Even the Pope and President Trump weighed in on the issue that went to a high court to decide little Charlie’s fate. Ultimately his parents yielded to the court’s decision and Charlie died on Friday July 28th.
This heartbreaking story points out how nearly impossible it can be for parents to make life-and-death decisions for their children. In this interview my guest Blyth Lord experienced a similar tragic situation when her baby daughter was diagnosed with Tay-Sachs disease, a rare genetic disorder. Blyth shares how she coped with the diagnosis and the remaining months of her daughter’s life, as well as her subsequent grief.
Blyth went on to found the Courageous Parents Network and to contribute to the Pediatric Starter Kit for the Conversation Project. You’ll learn:
What factors are most helpful to families coping with the devastating loss of a child.
The benefits of Pediatric Palliative Care from a parent’s perspective.
How the Courageous Parents Network is offering support to parents caring for terminally ill children.
How the Pediatric Starter Kit from The Conversation Project is helping parents have important conversations with their ill children.
Blyth Lord is the founder and Executive Director of Courageous Parents Network, a nonprofit focused on improving the experience of parents caring for children with life-limiting illness through education, advocacy and parent-to-parent support. Blyth is also the Executive Director of the Cameron and Hayden Lord Foundation, a small family grant-making foundation whose mission is to advance pediatric palliative care in the United States, as well as fund research of therapies for lysosomal storage diseases. Blyth’s daughter, Cameron, and nephew, Hayden, died of Tay-Sachs disease in 2001. In the years following, Blyth has promoted the needs of families caring for children with serious illness and how providers can best meet these needs. Blyth is also co-chair of the Parent Advisory Group for the AAP’s Section on Hospice and Palliative Medicine.
Blyth sits on the board of National Tay-Sachs and Allied Disease and on the board of The Children’s Room, a bereavement support program for young families who have lost parents/siblings/children.
Looking back and ahead to the future after 100 episodes of the EOLU podcast.
In this episode I’m joined by my own very dear husband, Dr. Larry George who talks with me about reaching the 100th episode of this podcast and offers his insights about the medical profession and end-of-life issues.
Why I started End-of-Life University
What I’ve learned from all the interviews I’ve done
My favorite episodes of this podcast
Goals for the future of End-of-Life University, particularly helping to educate the medical profession about death and dying
Next week I’ll be celebrating the 100th episode of this podcast! I’ll have a special guest on the show so stay tuned!
Upcoming events include:
Friday July 21st: Hospice Happy Hour Hangout for all of my supporters on Patreon.com/eolu
Sunday July 23rd: Virtual Death Cafe – 3 pm Pacific/6 pm Eastern (everyone welcome to join the conversation! Read more here.)
Tuesday August 8th isDying to Know Day and I’ll be hosting a Virtual Death Cafe at 5 pm Pacific/8 pm Eastern. (More information at eoluniversity.com)
“An Evening With Ira Byock MD” to celebrate the 20th anniversary of his groundbreaking book Dying Well!
Monday August 21st
6 pm Pacific/9 pm Eastern
Registration information available soon. (Save the Date for now!)
Here are the benefits I’ve received from my daily spiritual practice of death contemplation:
Gratitude for every moment of life
Taking responsibility for my life
Looking within myself for answers
Finding joy in being alive
Being prepared for anything!
You can use the book The Tao of Death as a guide for a daily practice of death contemplation. Simply read one verse each day, spend some time thinking about what it means for you, then write in your companion journal (available for free download here) about the question that accompanies the verse. When you finish the book you will be well on your way to a daily death contemplation practice that you can continue for years.
I hope you find that his practice enriches your life as much as it has mine! Send me a message and let me know how it’s going for you (email firstname.lastname@example.org or Tweet me @spiritualmd.)