This episode is the first of a 4-part series that introduces you to the members of a palliative care team. Today Dr. Colin Scibetta discusses his role as the physician on the team and how palliative care differs from hospice care. In future episodes you’ll hear from the team nurse, social worker and chaplain.
As this episode airs I am enjoying a trip through Spain, including cycling in the Andalucia region! I’ll be back home in a few weeks to report on the trip. Follow me on Instagram to see my photos at kwyattmd or this link: https://www.instagram.com/kwyattmd/
This interview will cover:
What palliative care consists of
The difference between palliative care and hospice
The benefits of palliative care for patients
How the whole-person approach of palliative medicine also benefits care providers
Why Providence Institute for Human Caring (et al) was awarded the Circle of Life Award from the American Hospital Association
Colin Scibetta MD is a fellowship-trained palliative medicine physician who complete his undergrad in neuroscience and biology at Wesleyan University. He then moved to Ecuador where he worked on a health initiative for indigenous communities impacted by oil development. Dr. Scibetta did his undergraduate medical training at the University of California, San Francisco School of Medicine, where he also completed an internal medicine residency and a fellowship in hospice and palliative medicine.
Remember to tune in next week for Part 2 of this palliative care series! If you enjoy this content be sure to share it with others who might find it helpful and consider leaving a review on iTunes.
In this episode I share an interview with Cheryl Jones, host of the Good Grief Radio Show, therapist and author of the newly-released novel An Ocean Between Them. We talk about the important subject of meeting the needs of members of the LGBTQ community at the end of life, which is part of the story told in her new book. Learn about Cheryl’s work here.
I’ll be leaving for Spain in just a few days! While I’m traveling you will be able to listen to a 4-part series on Palliative Care during this podcast so you won’t miss a single episode! If you’re interested you can follow my photos on Instagram at kwyattmd!
A HUGE THANK YOU to my latest supporters on Patreon.com/eolu: Lisa Milton, Debbie Hall and Christine Hazard Phillips. Your contributions are greatly appreciated and help keep this podcast and the EOLU Interview Series on the air. Join the team to get special bonus content!
CSU Institute for Palliative Care is holding a National Symposium on Palliative Care in San Diego October 11-12. Go to CSUpalliativecare.org to learn more.
My guest Cheryl Jones is a grief counselor, host of the Good Grief Radio Show on VoiceAmerica, and the author of the newly-released novel An Ocean Between Them. We will discuss the challenges that LGBTQ people experience in receiving care at the end of life and ways to make our organizations and facilities more inclusive.
In this interview you will learn:
Why members of the LGBTQ community access less healthcare than the general populatioN
Obstacles faced by LGBTQ individuals in receiving care in residential facilities, hospices, hospitals
Why a durable medical power of attorney is an essential document for all LGBTQ individuals
How the organization SAGE advocates for LGBTQ seniors
How to find common ground in end-of-life care even when we don’t agree on lifestyle choices
About post-traumatic growth and why it’s important to foster
Ways to create an LGBTQ-supportive environment in your organization or business
About Cheryl’s novel that addresses the challenges of LGBTQ relationships with family at the end of life
Cheryl Jones is the host of the radio show Good Grief. She is also a grief counselor and cancer educator. During her education as a Marriage and Family Therapist, her first wife was diagnosed with Multiple Myeloma, which was at the time a uniformly terminal illness with a six month to one year prognosis. In the eight + years that followed, Cheryl engaged daily in the work of preparing for her death. She received training during this period from Stephen and Ondrea Levine (Who Dies and Grieving Into Life and Death) and Richard Olney (founder of Self-Acceptance Training). After her wife’s death, Cheryl immersed herself in her own multifaceted grief, surprised by frequent moments of joy.
Cheryl is a consultant and group leader at the Free Therapy Program of the Women’s Cancer Resource Center, where she developed, manages and teachies in their Continuing Education program. She has trained extensively with Erving Polster, leader in the field of gestalt therapy and author of Everybody’s Life is worth a Novel. She was Clinical Director at the Alternative Family Project, which served the therapeutic needs of LGBTQ families in San Francisco. Finally she is the author of the recently published novel: An Ocean Between Them.
In this episode I share an interview I did with Joanna Penn on her podcast for authors “The Creative Penn.” We talk about why it’s important for authors to address death and grief in their writing and I’m sharing it with you to illustrate how we can talk about death with other people who don’t necessarily share our knowledge or interest. Learn more about Joanna’s awesome podcast here: www.thecreativepenn.com/podcasts/
This episode is sponsored by generous contributions on my page at Patreon.com/eolu. This week I’d like to thank my new patrons Mary Wilkinson, Joan Bretthauer, and Diane Adams! Your support means everything to me! To join the team and receive special bonuses go to Patreon.com/eolu.
Today I’m sharing with you an interview Joanna Penn did with me for her podcast The Creative Penn. A few weeks ago in Episode 156I discussed about how to talk to strangers about death and dying. My point was that we need to be bold enough to strike up conversations with people about death.
My interview with Joanna is an example of talking with someone not well-versed in end-of-life issues to show that it can be productive and inspirational at the same time. Joanna let me know that many of her listeners wrote to saw how much they enjoyed our interview and that it was very helpful to them personally and as writers. So let’s go have more conversations about death with people in all walks of life!
Lessons learned from working with those close to death
Paying attention to our inner passion for writing
Tips for dealing with death and grief in our characters and our writing. Joanna talks about some of the issues she tackled in her book Desecration.
Why we are able to write about grief that we might not have experienced personally
Why it’s okay to be comfortable with the subject of death
Changes in death culture as boomers age
There will be a new episode each Monday so be sure to tune in again! If you enjoy this content please share it with other and consider leaving a review on iTunes.
In this episode I share my thoughts on how to approach the very difficult task of making an end-of-life decision about the treatment a loved one should receive. Many people are called upon to be decision-makers in these challenging situations and this episode serves as a guide for choosing the best option for someone we love.Download the handout below:
This episode is sponsored by Suzanne O’Brien and her training program for caring for others at the end of life at Doulagivers.com and by your generous donations on my page at Patreon.com/eolu! Join the team and receive special bonuses as a thank-you!
Thank you to all of my patrons and sponsors! Your support means everything to me!
Every day families are called upon to make nearly impossible decisions about the type of care a loved one should receive as they near the end of life. Here are some suggestions for how to navigate this challenging situation when there is no advance directive available for guidance:
Gather medical information from all healthcare providers involved in care
Ask direct questions:
What is the diagnosis and what complications have occurred?
What is the effectiveness of the recommended treatment?
What are the chances for recovery or improvement?
Are there side effects from the treatment or will it cause additional suffering?
What will happen if treatment is stopped?
What would you do if this were your loved one?
Get expert advice and guidance from a palliative care team if available in your hospital
Remember past conversations with your loved one that might give you clues as to his or her preferences for the end of life
Consider the statistics that most Americans prefer to die at home and most do not want aggressive treatment to prolong life in the face of an incurable condition
Ask your loved one for guidance by expressing your concern and your desire to make the best decision. Even though your loved one cannot verbalize, they can hear you – listen for any intuitive or “felt” guidance that might come to you about the best choice to make.
Be gentle with yourself and recognize that you have done your best in a challenging situation
Seek support from others outside your family
Tune in next week for another episode! Share this content with others who might it helpful and consider leaving a review on iTunes.
This episode is sponsored by my book What Really Matters: 7 Lessons for Living from the Stories of the Dying. This book focuses on the spiritual lessons I learned from my dying patients and how they changed my life!