Learn how death doulas can benefit both patients and staff when they are added to the hospice interdisciplinary team.
Today I’m sharing an interview with Sherry Majewski who is a hospice-certified LPN who went to become a Certified Death Doula and is now helping her employer create a doula program within the hospice. We talk about the benefits and challenges of adding doulas to the hospice team and why this is an important step forward as we work to improve care for the dying. Learn more about Sherry’s doula services at her website:
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Learn the essential aspects of “soul midwifery” from a true pioneer in the field of end-of-life care.
My guest Felicity Warner has been caring for the dying and teaching others to provide care for over 20 years. She shares with us how she found soul midwifery as her calling and the changes she has observed over the past two decades of her work as she has trained hundreds of people to become soul midwives in their own communities. Learn more at her website:
How Felicity first became interested in working with dying patients
A look back at death and dying 20 years ago and the changes that have taken place over time
The greatest challenges we face today in offering quality care to the dying
What Felicity means by the term “soul midwife”
How to prepare in order to be present with the dying
Why listening is the most important skill we can develop in our work
Felicity’s newest book: Sacred Oilsand what we can learn from it
Felicity’s Soul Midwives School and the trainings offered there
Where to get Felicity’s books and how to work with her remotely or in person
A good death is an extraordinary, moving and sacred experience. It can also have a healing quality, not only for the person who is involved but their families, friends and the wider community. (Felicity Warner, Gentle Dying)
Learn about my Top-10 picks for people, events and trends that have changed the end-of-life movement in 2017.
In this final episode of 2017 I take a look back at the previous year and share my thoughts on some of the events and people that I believe will have a big impact on how our society deals with the end of life.
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Here are my picks for the 2017 Game Changers in the Death-Positive Movement:
The documentary film “Extremis” was nominated for an Academy Award for Best Documentary Short. The film was also picked up by Netflix in 2016. It is a powerful depiction of end-of-life care in the ICU staffed by Dr. Jessica Zitter, which should serve as a wake-up call to people about the need to do end-of-life planning before a healthcare crisis occurs.
Dr. Jessica Zitter’s book Extreme Measures was also released this year. In addition she wrote an article for the N.Y. Times (“First Sex Ed Then Death Ed”) calling for death education classes for all high school students. This novel idea has the potential to change our society’s perception of death and dying by introducing the subject to young people. Dr. Zitter is truly a game changer!
In March and May of 2017 the organization The Dinner Party (a movement to provide community for millennials dealing with loss) convened meetings with business leaders from some prominent US corporations to discuss loss and the workplace. They emphasized the importance of developing workplace policies and protocols for managing bereaved employees and offering them assistance. These conversations are just the first step in changing how grief is recognized and supported in the workplace rather than being ignored.
In April 2017 the 1st International Death Doula Training was held in Maui for the purpose of teaching people from around the globe to serve others as death doulas. This event was a game changer because it validated the death doula movement, increased the number of qualified doulas who can serve their communities, and provided a networking platform for death workers, which helped strengthen and expand the movement. The 2nd International training will take place in 2018!
Also in Apri the National Rx Drug Abuse and Heroin Summit was held to address the epidemic of opioid addiction in this country. Measures have been taken to limit the number of pain pills that can be prescribed and dispensed at one time. This is an important and game-changing step to deal with the overwhelming public crisis of opioid deaths but caution is necessary. We must be vigilant to ensure that all hospice and palliative care patients have access to the medications they need for pain and symptom management.
On June 27, 2017 Jon Underwood, founder of Death Cafe, died suddenly and unexpectedly at a young age. Jon has been a game changer from the beginning by creating the Death Cafe platform for conversations about death that has spread around the world. But the tragedy of his death is also a potential game changer because of the powerful legacy Jon leaves behind and because of the potential for tragedy to inspire growth, creativity and healing. The entire death-positive movement is indebted to Jon for his inspiring and gentle leadership and may his death be a catalyst for transformation.
In July a new smart phone app named WeCroak was introduced. This app is a game changer because it helps people to think about death in a positive manner by sending reminders (“You will die one day”) and quotes on their phones 5 times a day. Technology has the potential to revolutionize our approach to death and dying and this simple $.99 app is just one small step toward the change that is needed.
The film Coco was released in the US by Disney and Pixar in November. Coco tells the story of a 12-year old boy who is transported to the land of the dead on Dia de los Muertos. There he receives help from his departed great-great grandfather to return to his family in the land of the living. The film depicts joyful skeletons who dance and sing and it portrays a positive image of life after death. While it is a children’s movie Coco has a powerful message for adults and is likely to stimulate much conversation in families about death and departed ancestors. It is exciting to see Hollywood begin to address death in a positive manner and this film is a game changer that will hopefully lead to more such productions in the future.
In December the first EndWell Symposium, created by Dr. Shoshana Ungerleiderand her foundation, was held in San Francisco. This groundbreaking symposium brought together thought leaders from healthcare, design and technology to share ideas on how to improve end-of-life care. The synergy of this collaborative event will have a ripple effect across the country and should lead to innovation and creativity around death and dying in the months to come. Dr. Ungerleider is a game changer for her forward-thinking generosity and ingenuity!
Also in December the Northpoint Expeditionary Learning Academy in Prescott AZ held a class for students in grades 9-12 on “Death and the Meaning of Life.” School Director Charles Mentken taught the class, which provided a comprehensive look at death and dying from various cultural and religious perspectives. The elective class also introduced the students to options for hospice and palliative care, death doulas, home funerals, cremation, and traditional funeral and burial services. This may be the first “pilot project” course of the type Dr. Jessica Zitter called for in her NY Times article and it is definitely a game changer. The students in the course have reported that their attitudes and fears about death have been totally transformed, as well as their approach to life, as a result of what they learned in the class. (I’ll be featuring an interview with Charles Mentken and 3 of his students on the End-of-Life University Interview Series in early 2018. Sign up if you’re not already on the list!)
I hope your holiday celebrations have been filled with joy and light and that you feel ready to embark on a brand new year next week! There will be a new episode on New Year’s Day where I will share my “wish list” for 2018.