End of Life, EOLPodcast

Ep. 159 How to Make Difficult End-of-Life Decisions for a Loved One

PodcastDecisions

 

 

purposequestionIn this episode I share my thoughts on how to approach the very difficult task of making an end-of-life decision about the treatment a loved one should receive. Many people are called upon to be decision-makers in these challenging situations and this episode serves as a guide for choosing the best option for someone we love. Download the handout below:

Guide for Difficult EOL Decisions

ANNOUNCEMENTS:

This episode is sponsored by Suzanne O’Brien and her training program for caring for others at the end of life at Doulagivers.com and by your generous donations on my page at Patreon.com/eolu! Join the team and receive special bonuses as a thank-you!

Thank you to all of my patrons and sponsors! Your support means everything to me!

FEATURE PRESENTATION:

Download the handout here:

Guide for Difficult EOL Decisions

Every day families are called upon to make nearly impossible decisions about the type of care a loved one should receive as they near the end of life. Here are some suggestions for how to navigate this challenging situation when there is no advance directive available for guidance:

  • Gather medical information from all healthcare providers involved in care
  • Ask direct questions:
    • What is the diagnosis and what complications have occurred?
    • What is the effectiveness of the recommended treatment?
    • What are the chances for recovery or improvement?
    • Are there side effects from the treatment or will it cause additional suffering?
    • What will happen if treatment is stopped?
    • What would you do if this were your loved one?
  • Get expert advice and guidance from a palliative care team if available in your hospital
  • Remember past conversations with your loved one that might give you clues as to his or her preferences for the end of life
  • Consider the statistics that most Americans prefer to die at home and most do not want aggressive treatment to prolong life in the face of an incurable condition
  • Ask your loved one for guidance by expressing your concern and your desire to make the best decision. Even though your loved one cannot verbalize, they can hear you – listen for any intuitive or “felt” guidance that might come to you about the best choice to make.
  • Be gentle with yourself and recognize that you have done your best in a challenging situation
  • Seek support from others outside your family

Tune in next week for another episode! Share this content with others who might it helpful and consider leaving a review on iTunes.

Until next time …

Face Your Fear        BE Ready         Love Your Life

karen-signature

 

End of Life, EOLPodcast

Ep. 157 “Journey’s End”: Stories for Everyone About Death with Julie Saeger Nierenberg and Victoria Brewster

Learn about a helpful book of stories dealing with death, dying and the end of life and how you can contribute your own story to the next book in the series.

PodcastJulieVikki

 

 

julievikkicollage

In this episode I present my conversation with the co-editors and co-curators of the book Journey’s End: Death, Dying, and the End of Life – Julie Saeger Nierenberg and Victoria Brewster

Learn more about the book at journeysendbooks.com

ANNOUNCEMENTS: 

SpCare-AuthPresence-EoL-UnivThis episode is sponsored by Authentic Presence training for healthcare providers from the Spiritual Care Program.  You can receive a certificate in contemplative end-of-life care by completing this series of three courses, including an 8-day residential immersion retreat. Highly recommended!

Learn more here.

 

FEATURE PRESENTATION:
Today Julie Saeger Nierenberg and Victoria Brewster join me to talk about their book journeysendcoverJourney’s End: Death, Dying, and the End of Life, which is a compilation of quotes, stories and resources that look at death from various perspectives. In our conversation we discuss:

  • How Julie and Vikki ended up collaborating on this book
  • How the stories in the book are organized:
    • Personal Stories of Professionals and Lay People
    • Professional Support and Caregiving Perspectives
    • Funeral Home, Post-Death and Alternative Burial
    • Grief and Bereavement
  • How they chose the contributors for the book
  • The feedback they’ve received from readers
  • How this book of stories can be useful in many settings for both professionals and lay people
  • How to submit a story for the next book in the series which will feature various cultural, ethnic and religious perspectives on death and dying

Read more about the book here.

Get the book here!

Tune in every Monday for a new episode! If you enjoy this content please share it with others  and consider leaving a review on iTunes!

Until next week:

Face Your Fear            BE Ready           Love Your Life

karen-signature

 

 

End of Life, EOLPodcast

Ep. 152 Many Ways to be of Service to the Dying

 

PodcastServicehands

wrmflatcoverIn this episode I share some thoughts about how to get involved in the end-of-life movement if you have recently become interested in death and dying. You’ll hear about my best ideas for contributing to change in the way people die and offering your service to others.

Check out my book to read stories about hospice patients I cared for.

 

ANNOUNCEMENTS:

SpCare-AuthPresence-EoL-UnivWelcome to our new sponsor: Authentic Presence Training from the Spiritual Care Program.  Authentic Presence brings together practical contemplative resources with the knowledge and skills of modern hospice and palliative care. Suitable for professionals from all faith traditions or none, the course draws its inspiration particularly from Buddhist contemplative practice, the acclaimed classic The Tibetan Book of Living and Dying, the work of the Dalai Lama, as well as contemplative neuroscience. Learn more here.

Thank you also to our new supporter on Patreon.com/eolu: Althea Halchuk! I’m deeply appreciative of your contribution to help keep this podcast and the EOL University Interview Series on the air! Go to Patreon.com/eolu to learn more and sign up.

obrienwebinarJoin me and my guest Suzanne O’Brien RN for a free webinar: “EOL Doula Training for Caregivers and Volunteers” on Tuesday July 24th at 5 pm Pacific/8 pm Eastern. Register here and you’ll receive the replay if you can’t attend live.

 

FEATURE PRESENTATION:

Learn about these opportunities to be of service to the dying in many different capacities:

  • Work as a professional in hospice or palliative care (call your local hospice/palliative care program to see if you have the credentials needed and to learn about any training offered):
    • physician
    • nurse
    • nurse practitioner
    • nursing assistant
    • social worker
    • chaplain
  • Become a volunteer – for those with no medical training:
    • Hospice volunteers are always needed (call your local hospice for more information)
    • No One Dies Alone – a program to ensure that each dying patient in the hospital has companionship if desired at the end of life. Listen to my interview here and learn more about NODA here.
    • Threshold Choir – for those who love to sing; offer support and inspiration to the dying and their families through vocal music. Listen to my interview here and learn more about Threshold Choir here.
    • Twilight Brigade – to provide end-of-life support to veterans. Learn more here.
    • Pet Therapy for Hospice Patients – if you have a special pet and would like to receive training to provide visits to patients. Learn more in this interview.
    • Seek out other opportunities in your community like Meals on Wheels, hospital or nursing home volunteer programs, church-related visitation programs
  • Become an End-of-Life Doula – check out the training mentioned above with Suzanne O’Brien and find out if this work is a good fit for you. Learn more here.
  • Start a caregiver training program – the need for in-home caregivers is going to increase dramatically over the next decade. Consider becoming a caregiver trainer to help your community meet this need.
  • Teach a death education class – there is currently a great need for education about Slide01death and dying in our society. Consider teaching your own class or workshop to provide information to others in your community. Get the Teaching Guidelines for a Death & Dying Class here.

 

 

  • Create a Community Event to inspire people to learn more about the end of life:
    • Film series – listen to ideas here
    • Book club – read about A Year of Reading Dangerously online reading group here
    • Death Cafe – learn more here
    • Speaker series
  • Start a Social Model Hospice – to provide non-medical residential support and caregiving for those who are without a proper home at the end of life. Listen to the interview here.

Whatever inspires you I hope you will gather your courage and take the next step to get involved in the end-of-life movement. Your help is needed!

There will be a new episode next Monday. If you enjoy this content please share it with others and consider leaving a review on iTunes. Thank you for your interest and support!

Until next time:

Face Your Fear            BE Ready             Love Your Life

karen-signature

 

 

 

Aging, End of Life, EOLPodcast

Ep. 135 How to Practice Minimalism at the End of Life

Learn how a minimalist lifestyle can help you find more joy and meaning as you approach the later days of life.

podcastminimalism

minimalistIn this episode I share my thoughts on why the minimalist lifestyle could help us avoid excessive and unnecessary medical treatment at the end of life. In addition there are many other benefits to living simply and with “less is more” as our goal when we get older.

Read the companion blog here.

ANNOUNCEMENTS:

You can still join A Year of Reading Dangerously and confront your own discomfort about death, dying and the afterlife by reading one “dangerous” book each month in 2018! Sign up here!

Slide01

Get the Teaching Guidelines for a Death & Dying Class and you’ll be on the mailing list to learn about the next class on creating your own course in death and dying coming up soon! Sign up and download here!

 

I’m so grateful this week to my latest supporters on Patreon.com/eolu! Thank you so much to Glenda Myles, Malynda Cress, Karen Britton, Mila Martin, and Tami Yinger! Your generosity means so much to me! If you want to join them go to Patreon.com/eolu to learn more about the bonuses you’ll receive for signing up!

FEATURE PRESENTATION:

The minimalist movement is all the rage right now among millennials and it has a lot of positive aspects we can learn from. The emphasis is on living simply, with less material possessions in order to have more joy and freedom in life. This lifestyle could serve us well as we approach our own end of life. Here are some ways to live more simply:

  • Clear out possessions that you no longer use or cherish. This idea has been described in a recent blog and book about the Swedish practice of “death-cleaning.”
  • Comes to terms with mortality. Recognize that life is finite and death is inevitable, therefore it is important to be intentional about how you live each moment in every day, including what kind of healthcare you choose.
  • Take control over your healthcare – be proactive and question recommendations in these areas:
    • Medications – Ask if the drugs you are taking are still necessary, if they could be causing side effects or creating negative interactions with one another. Ask if you can try reducing dosages or the number of medications you are being prescribed. Many seniors are taking at least 5 prescription medications according to studies.
    • Annual examstudies show that the annual physical exam wastes money and time and might even be harmful. Ask if you can decrease to one physical every 3 yeats.
    • Health screenings – Over age 70 it is no longer recommended that you have the following screening tests: colonoscopy, mammogram, PSA, pap smear. Studies show that excessive screening can lead to false positive results, over-diagnosis and harmful over-treatment.
  • Plan ahead and be prepared in order to minimize complications in these areas:
    • Aging – How will you manage the physical changes of later life? Who will help you?
    • Housing – Where will you live if you can’t stay in your own home?
    • Terminal care – What type of treatment do you want to receive at the end of life and for how long?
    • After-death care – What type of funeral and burial do you want to have?
  • Learn to live in the moment – so you can enjoy all of life.
  • Focus on what really matters – to help you eliminate the things you no longer care about.
  • Find purpose and meaning by living simply and with intention for the rest of your days.

Remember to tune in every Monday for a new episode! If you enjoy this content please subscribe and leave a review on iTunes!

Until next week remember …

Face Your Fear           BE Ready          Love Your Life

karen-signature

End of Life, EOLPodcast, Hospice

Ep. 111 Moments of Life Campaign: Hope Through Hospice with Anita Brikman

Learn how this program of the NHPCO is helping to change public perception of hospice.

PodcastMoments

Anita2014croppedIn this episode I share an interview with Anita Brikman, VP of Strategic Communications for the National Hospice and Palliative Care Organization (NHPCO.) We will discuss the “Moments of Life” Campaign, which promotes public awareness of hospice and how choosing hospice at the end of life is not “giving up.”

Learn more at https://moments.nhpco.org

ANNOUNCEMENTS:

OLYMPUS DIGITAL CAMERAAt the time of this broadcast I am still traveling through Italy and biking in the Puglia region! I’ll be gathering information and writing stories for a new book on grief.

You can follow photos of my journey on Instagram and Facebook if you are interested.

Patreonbecome2xAs always I am infinitely grateful to all of my supporters on Patreon.com/eolu who have been making monthly contributions to keep this show and the End-of-Life University Interview Series on the air! Your support means so much to me! If you would like to become a patron or learn more about it go to Patreon.com/eolu.

FEATURED PRESENTATION:

Anita Brikman and I will discuss the NHPCO’s public awareness campaign Moments of Life: Made Possible by Hospice. You’ll enjoy hearing about the creation of this beautiful campaign and how it might benefit you and your community. Watch this brief video about the campaign:

In this interview you will learn:

  • How the Moments of Life campaign is changing misperceptions about hospice care
  • How cultural barriers to hospice care are being broken down by the Moments of Life videos
  • What tools are avaiable on the Moments of Life website for patients and providers
  • How you can help spread the word about this campaign in your own community
  • How to submit a story to the NHPCO to be part of the campaign

Anita Brikman joined NHPCO in September of 2013 as the senior vice president of strategic communications and spokesperson for the national organization, which represents 1,600 hospice and palliative care providers with 3,400 locations across the United States, and more than 60,000 individual members. NHPCO’s affiliates, the National Hospice Foundation and Hospice Action Network, promote access to this end-of-life benefit and advocate to lawmakers and regulators about its vital importance to patients and families.

I hope you’ll visit Moments of Life and read or watch the beautiful stories of hospice patients there!

Thanks for tuning in and remember there will be a new episode every Monday! Until next week remember:

Face Your Fear                      BE Ready                     Love Your Life

karen-signature