End of Life, EOLPodcast, Hospice

Ep. 216 Hospice Under Threat: How to Protect Patient-Centered End-of-Life Care with Jeff Lycan

Learn about the “dark side” of the hospice business and how to identify and support organizations that are truly patient-centered.

PodcastEOLU19Lycan

My guest Jeffrey Lycan has spent the last 21 years of his  hospice and palliative care nursing career as an advocate for improving care and quality of life for patients at the end of life. He will discuss the recent alarming reports issued by the OIG (Office of the Inspector General) about instances of negligent care in some hospices, the worrisome trend toward profit-centered rather than patient-centered care, and how to support community-based hospices that are preserving Cicely Saunders’ legacy of end-of-life care. Learn about the Why It Matters Campaign he has started:

www.ohioshospice.org/whyitmatters

Listen here:

 

This episode includes:

  • The two OIG reports from July 2019 that exposed fraudulent and negligent care in some hospices (see links below)
  • What a “deficiency” in a hospice survey actually means
  •  Business changes in the hospice industry that have contributed to flaws in the care being offered
  • How some hospices now focus on profit first rather than patient care first
  • How profiteering harms the hospice system, patients and staff
  • New MedPAC proposal for lowering the annual per patient cap for hospices and why it may be a good thing
  • How consumers can choose the best hospice for their loved ones
  • How to register a complaint about hospice care
  • The campaign Why It Matters: Preserving the Legacy of Hospice

As originally championed by Cicely Saunders, MD, the founder of the modern hospice movement, the hospice model of care was based on providing end-of-life care with both compassion and science, and offering this care through engaged community-based, not- for-profit programs.

-from Why It Matters Website

ANNOUNCING:

FREE Webinar with Jane Barton: The Loneliness Epidemic

Register here.

BartonWebinarloneliness

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eoluespecially Susan Baumhammer, your contribution means  everything to me!

EOLPodcast, Hospice

Ep. 188 Nurturing the Heart of Hospice: Tools for the Workplace with Brenda Clarkson RN

Learn how administrators and managers can better support their staff in providing heart-based care to hospice patients. 

PodcastClarkson

My guest Brenda Clarkson, with over 40 years of nursing experience in hospice, truly understands the mystery that surrounds the dying process and how best to support patients and hospice staff as they journey together through the end-of-life experience. She shares her model for returning to the roots of excellent hospice care while navigating today’s regulatory challenges as outlined in her book “The Heart of Hospice: Core Competencies for Reclaiming the Mystery.” Contact Brenda at:

bclarkson@virginiahospices.org

heartofhospicecover

Get the book here.

Listen here:

 

ANNOUNCEMENTS:

Registration is now open for the 8-week online course Spiritual Journeys in Chronic Illness. Rev. Dr. Terri Daniel and I will be co-teaching the class, which is offered by the Applied Wisdom Institute in partnership with the University of Redlands. CEU’s will be available! Learn more here.

Mark your calendars now for the event of the year!!! Announcing the Beautiful Dying Expo, which will be held in San Diego CA on November 2-3, 2019. I’ll be there as a facilitator for the event and registration is open now for workshop presenters, vendors, sponsors, authors, filmmakers. Go to www.beautifuldyingexpo.com to learn more. Contact Michele Little at info@beautifuldyingexpo.com if you are interested in being a presenter.

This interview includes:

  • Why honoring “the mystery” of dying and death is important
  • How the modern hospice movement has strayed from from the original heart of patient care
  • A new “mystery model” of hospice care that overcomes some of the challenges faced by hospices today
  • Core competencies of the hospice staff
  • The 4 phases of growth experienced by hospice workers
  • How to decrease the turnover rate of hospice workers
  • Tools for administrators and managers to choose the best staff for hospice work and support them emotionally and spiritually

Links mentioned in this episode:

PatreonMugShot

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eolu, especially my new Patron, Martha Turner!!

End of Life, EOLPodcast, Hospice

Ep. 138 Pet Therapy for Hospice Patients with Carol Mestemacher and Magnum – Facility Dog

Learn how pet therapy with a trained animal companion can benefit hospice patients physically and emotionally.

PodcastMagnum

MagnumIn this episode I share a “legacy interview” from the archives with Magnum – a trained facility dog – and his handler Carol Mestemacher about the benefits of pet therapy for hospice patients. Magnum recently “retired” from his volunteer position so I decided to honor his work by featuring this interview today. Thank you for your service Magnum and Carol!

Links to learn more about pet therapy:

Champ Assistance Dogs

Assistance Dogs International

Pet Partners

ANNOUNCEMENTS:

A huge thank you to my new supporters on Patreon.com/eolu: Susan Clark and Howard Bryant! Your contributions help me keep this podcast and the End-of-Life University Interview Series on the air. If you’d like to join us for as little as $1 a month and receive special bonuses go to Patreon.com/eolu to learn more!

Links to events taking place now:

“A Year of Reading Dangerously” – online reading group about dying, death and the afterlife

S.M.A.R.T. Decisions Challenge – 10-day challenge for completing your advance directives this month

Teaching Guidelines for a Death & Dying Class – get this free guide to help you start a class

FEATURE PRESENTATION:

This episode features an interview with Magnum – Facility Dog and his handler Carol Mestemacher about the benefits of pet therapy for hospice patients.

You will learn:

  • The physical and emotional changes that occur for patients with pet therapy
  • The training required for an animal to be certified for pet therapy
  • How maximum security prisoners are providing training for therapy animals
  • What type of pet is well-suited to become a therapy animal
  • How Magnum serves as an ambassador for hospice in his community
  • How to start a pet therapy program in your area

Remember to tune in for a new episode every Monday! If you enjoy this podcast please subscribe and leave a review on iTunes!

Until next week …

Face Your Fear              BE Ready           Love Your Life

karen-signature

End of Life, EOLPodcast, Uncategorized

Ep. 110 Threshold Choir: Singing to Comfort the Dying

Learn how small choirs around the country are bringing beauty and solace to the bedsides of dying patients.

PodcastThreshold

ThresholdCollageIn this episode I share an interview with Kate Munger and Marti Mariette who have helped to spread the “threshold choir” movement across the U.S. and the world. You’ll hear clips of their beautiful singing! Learn more at www.thresholdchoir.org.

ANNOUNCEMENTS:

IMG_0723I’m still traveling in Italy and you can keep track of my journey by following me on Instagram (kwyattmd) or Facebook (Karen Wyatt MD). I’m supposed to be getting some research and writing done for my new book on grief … but we’ll see how it goes. I might be just eating my way through the country!

Patreonbecome2xYou can support this podcast and the EOLU Interview Series with a small donation of $1 or $2 per month! As a thank-you gift you’ll receive a the Top 10 Interviews from EOLU, a recorded Q&A session each month (where I’ll be answering YOUR questions), and a chance to have me promote your work on this podcast! Learn more at Patreon.com/eolu.

FEATURED PRESENTATION:

Today I welcome my special guests Kate Munger, the founder of the Threshold Choir movement, and Marti Mariette, who is the director of the Santa Cruz Threshold Choir. They will share with us:

  • How and why Kate started the first Threshold Choir
  • The benefits of bedside singing for patients and their families
  • The benefits experienced by the singers themselves
  • How to start or join a Threshold Choir in your area
  • Samples of some special Threshold Choir music!

Get the Threshold Choir CDs here.

Tune in each Monday for a new episode and be sure to leave a review on iTunes to help me share this podcast far and wide!

Until next time …

Face Your Fear.                  BE Ready.                     Love Your Life.

karen-signature

 

EOLPodcast

Ep. 71 The Death-Positive Movement: Trends and Goals for 2017

It’s a brand new year! Let’s look ahead and see what’s possible in 2017!

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In today’s episode of the podcast we’ll look ahead at the coming year, study the trends in the death-positive movement and discover where it might be possible to create new volunteer and career opportunities for ourselves and our communities in 2017.

First I’ll share my own goals for the coming year, which include revising, editing and publishing the two books I wrote in 2016. I also plan to release two new training courses this spring and have lined up a fascinating group of speakers for the End-of-Life University Interview Series. To stay up-to-date on all the latest interviews and offering from EOLU, be sure to to sign up for the mailing list here.

Thank you from the bottom of my heart to all the contributors to this podcast on supportonpatreon-e1412764908776Patreon.com/eolu. Your support helps pay for the expenses of creating this podcast and the EOLU Interview Series. If you’d like to become a patron just go to Patreon.com/eolu and sign up to contribute just $1 or $2 per month.

Here are some of the Trends I’ll be watching in 2017:

  1. Increasing number of Palliative Care Programs in hospitals across the country. Though many of the current programs are either understaffed or underfunded, these problems are likely to be corrected in the near future. To meet current standards, each palliative care team must have a chaplain and a social worker so if you have training in either of those fields you might find employment opportunities in a palliative care program in your community.
  2. Need for creative solutions for hospice care. Because for-profit hospices are taking over many of the smaller non-profit hospices there is a risk that uninsured patients or those with needs for expensive care might be turned away. There is a need for social-model hospices (see Episode 23) and possibly for community-based non-profit, non-Medicare-certified organizations that can help bridge gaps in services for hospice patients. Here are some recommended training programs for becoming an end-of-life doula or midwife:
    1. Sebastopol CA: Jerrigrace Lyons http://finalpassages.org
    2. Austin Texas: Donna Belk (Online training program): http://beyondhospice.com
    3. Austin Texas: Deanna Cochran http://www.qualityoflifecare.com
    4. Ann Arbor Michigan: Merrilyn Rush and Patty Brennan http://center4cby.com This training starts right away – Feb. 3-5, 2017
    5. Calgary Canada: Sarah Kerr http://soulpassages.ca/about/
    6. New York and online: Suzanne B. O’Brien RN: http://www.doulagivers.com
  3. Need for more caregivers. As baby boomers age and approach the end-of-life the caregiver shortage will become a much greater issue. Opportunities will exist to create caregiver training and support services in communities and even to start businesses that employ caregivers.
  4. Community outreach can help support the changes that are slowly occurring in the healthcare system. One of the best ways to encourage change in healthcare is to empower consumers to demand changes from their physicians. This will require outreach and education in the community. Here are some ideas for outreach and links to learn more from previous podcasts:
    1. Plan a community end-of-life event.
    2. Start a Death Cafe.
    3. Plan an EOL Film Festival.
    4. Start an EOL Book Club. Get a list of potential books here.
  5. Create an “Inreach” for members of the EOL community by starting a discussion group, networking event or collaboration opportunity for those who are already working in this arena.
  6. Bring volunteer movements to your community. Consider starting a group of volunteer caregivers who can provide respite care for family caregivers or start your own chapter of Threshold Choir, Twilight Brigade, or No One Dies Alone.
  7. Provide education for your community either as a voluntary act of service or as a paid instructor. Here are some possible ideas:
    1. Assist people to correctly complete their advance directives.
    2. Teach a community class on death and dying.
    3. Train caregivers.
    4. Teach about green burial, promote a natural burial ground in your community, help people access green burial supplies
    5. Educate the community about their rights to a home funeral

I hope these ideas inspire your own personal goals for 2017! Stay connected with me and keep tuning in to the podcast. Let me know your own inspirations and plans for the New Year by adding your comments.

Until next week ….

Face Your Fears.              BE Ready.             Love Your Life.

End of Life, EOLPodcast, Hospice

Ep. 70 Looking Back on 2016: A Positive Year for End-of-Life Issues

In this final episode of 2016 Dr. Wyatt thanks all of the patrons who have generously made contributions on Patreon.com/eolu this year! Thank you for offering your support for this podcast and the End-of-Life University interview series!

In this look back at 2016 we talk about the following positive events in the end-of-life arena:

  • In January JAMA dedicated a special issue to “Death, Dying and the End-of-Life”, which represents a positive breakthrough in awareness of EOL issues by the medical profession
  • Medical schools began adopting new training programs for students in pain management, palliative care, and communication skills around advance care planning. There is a college-level program that pairs pre-med students with hospice patients
  • Nursing homes and long-term care facilities are bringing in children and college students to interact with patients
  • Dementia rates in the US  have dropped in the past year
  • Pilot studies are underway involving providing education and training to family caregivers and providing a small stipend to caregivers
  • A demonstration project is underway to study the benefits of providing curative care simultaneously with hospice care
  • Studies showed that palliative care lowers healthcare costs along with providing increased quality of life, improved pain management and fewer hospital days
  • Harvard study of adult development showed that relationships are a key to longevity
  • California and Colorado both passed assisted dying laws in 2016
  • The nation’s first conference on VSED was held this year
  • Conversation Sabbath took place for the first time in November, bringing discussions about death and dying into places of worship
  • Dying to Know Day was held in the US, inspired by the movement in Australia
  • Miss Norma, a 90-year old woman who refused treatment for her cancer, spent most of the year traveling around the country in an RV with her son and daughter-in-law, fully enjoying the last days of her life

Thank you for tuning in to the EOLU Podcast during 2016! I hope this has been a positive and productive year for you. May 2017 be filled with growth, surprises, peace and joy! See you next year and until then …

Face Your Fears.              BE Ready.              Love Your Life.

End of Life, EOLPodcast

Ep. 66: November End of Month Update on the End of Life

In this episode Dr. Wyatt thanks her latest supporter on Patreon.com/eolu, Suzanne O’Brien RN, founder of Doulagivers. If you would like to help support this podcast and End-of-Life University Interview Series for the small contribution of $1 or $2 per month, go to Patreon.com/eolu and sign up to become a supporter!

In other personal news, Dr. Wyatt just reached the 50,000 word goal on her novel-writing challenge for the month of November! Stay tuned for more information on Starry Night,  a novel about living and dying!

Go to DeathExpo.com if you are interested in getting the downloadable filed from Death Expo 2016. Tune in to Episode 65 to hear the highlights and take-aways from this fantastic educational event!

Next Dr. Wyatt shares the latest news and information about end-of-life issues that caught her eye during the month of November:

  • Survey of seniors in the U.S. shows that 27% have done absolutely no planning or preparing for the end of life. Those least likely to have prepared correlate with the following characteristics: age between 65-74, black or Hispanic, low-income, low education level, and diagnosis of Alzheimers.
  • Canadian study shows that for seniors who have completed Advance Directives, Values and Choices do not always align, showing a lack of guidance for choosing end-of-plans and confusion about basing choices on underlying values
  • a paper cited in the Journal of Pain and Symptom Management calls for improved consistency in honoring the EOL choices of patients in nursing homes and hospitals
  • Go Wish Card Game found helpful for patients completing their advance directives; helps them identify their values and priorities
  • Home-based Palliative Care shown to lower healthcare expenses in last year and 3 months of life, decrease hospital admissions and increase hospice utilizations. 87% of patients who receive palliative care at home are able to die at home, compared to only 24% of all Medicare patients who die at home
  • Review  of 43 palliative care clinical studies shows that palliative care improves quality of life but does not extend life
  • UC Santa Cruz has started a program to pair pre-med students with hospice patients
  • Study shows doctors are reluctant to discontinue routine medications that are no longer indicated for their patients at the end of life due to lack of awareness, low priority, and fear of causing patient to feel abandoned
  • Colorado became 6th state in the U.S. to approved medically aided dying during the November election
  • AARP and the National Association of Area Agencies on Aging have a launched a campaign to identify seniors suffering with loneliness and isolation in order to connect them with community resources; 43% of seniors report loneliness which leads to medical consequences
  • new movie Collateral Beauty deals with grief and death and will be released on Dec. 16th
  • Canadian singer-songwriter Leonard Cohen died on November 7th at the age of 82

Tune in every Monday for a new episode! Subscribe and leave reviews on iTunes by going here: https://itunes.apple.com/us/podcast/end-of-life-university/id1033282990 

Until next week remember:

Face Your Fears.                     BE Ready.                       Love Your Life.

End of Life, EOLPodcast, Grief, Hospice

Ep. 65 Changing the Perspective on Death: Highlights from Death Expo 2016

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In this episode Dr. Karen Wyatt shares her favorite “take-aways” from the 12 presentations of the recent Death Expo event. If you missed Death Expo you can still purchase the recordings from the event for just $36 (which is a great price for 12 hours of education.)  Go to this link to learn more. The speakers she highlights are:

Enjoy these highlights! If you feel inspired, consider purchasing the Collection!

Also visit the Patreon.com/eolu page if you’d like to become a supporter! As always:

Face Your Fears.                   BE Ready.                     Love Your Life.

End of Life, EOLPodcast, Hospice

Ep. 62 October End-of-Month Update – Halloween Edition

 

Dr. Wyatt thanks her newest Patreon.com supporter Tracy Zagata. You can become a supporter as well by going to Patreon.com/eolu and signing up!

Sign up for Death Expo which will take place Nov. 10-13, and hear 12 speakers on EOL issues. Go to DeathExpo.com to register free to tune in to these excellent presentations.

This episode is taking place on Halloween and the Day of the Dead. Dr. Wyatt includes the following updates:

  • CMS report 52% increase in Medicare spending on hospice between 2007 and 2015 due to 38% increase in the number of patients receiving hospice care, primarily patients with dementia
  • the DEA is mandating 34% decrease in opioid production due to dramatic increase in opioid-related deaths since 1999 – rate has quadrupled during that time frame
  • JAMA Oncology reports that the cost of secobarbital, the drug most frequently prescribed in assisted dying cases, has increased by $25oo; there is no explanation except that drug companies can get away with it
  • California is the first state to require that palliative care teams have a chaplain for those patients who want to receive spiritual care
  • Debra Beaulieu writes in HealthLeaders Media that all clinicians should know the following about palliative care: 1) that it’s not just for dying patients 2) that it is often underutilized and 3) all clinicians should have basic palliative care skills
  • Study in J. Palliative Med showed that home-based palliative care (as opposed to hospital-based care) meets more of patients’ needs in the last 3 months of life and costs $12,000 less per patient
  • Controversial “doll therapy” for dementia patients
  • Study shows that 11% of female caregivers over the age of 50 have to leave their employment to fulfill caregiver duties, costing $300,000 in lost wages, benefits, and Social Security over time
  • Census data reveals that currently 25% of seniors are considered “Elder Orphans,” meaning that they have no children or close family to care for them; these numbers will only grow as Baby Boomers age, reinforcing the need for more caregivers
  • Medicare Care Choice Pilot Program is currently underway; patients can receive home-hospice care while continuing curative treatments if they have a diagnosis of cancer, COPD, CHF, or HIV; there are 140 participating hospices in the program
  • Survey shows that 1/2 of MS patients would consider medically assisted dying in the case of unbearable pain, being a financial burden to others, or if unable to enjoy what makes life worth living
  • Study reveals the 69% of MOLST or POLST forms have incomplete information and 14% have conflicting choices, making them nearly impossible for care providers to follow
  • the nation’s first conference on VSED was held in October at the Seattle U. School of Law and was featured in an article in the NY Times. Phyllis Shacter was a speaker – you can hear her EOLU interview in episode 25
  • Conversation Sabbath will take place November 11-20 with >30 congregations from various faiths participating; the focus will be on EOL conversations and theconversationproject.org will provide tools and resources for the event
  • Andrew Henderson, 28 year old performance artist who is terminally ill has created an art performance called Taking it to the Grave and will tattoo the secrets of his audience on his body before he dies
  • Miss Norma, the 90 year old woman who chose to go on a cross-country RV tour with her son and daughter-in-law rather than undergo treatment for cancer, has died

Have a safe and meaningful Day of the Dead! Tune in every Monday for a new episode and support EOLU at Patreon.com/eolu. Until next week remember to:

Face Your Fears.                 BE Ready.                Love Your Life.

 

Aging, End of Life, EOLPodcast, Grief

Ep. 57 September End-of-Month Update and film Extremis

 

In today’s episode Dr. Wyatt thanks 3 new supporters on Patreon.com/eolu:

  • Joan Roellchen-Pfohl, RN
  • Martha Johnson – author of the upcoming book “Take Charge of the Rest of Your Life”; learn more at www.meetmarthajohnson.com
  • Marggie Hatala – author and teacher of a writing class related to end of life; her books are “Sally: A Memoir” and the forthcoming “Life as Prayer”; learn more at www.marggiehatala.com

Next she begins the Update for September by talking about the new documentary film currently streaming on Neflix: Extremis, which won 1st place at the Tribeca Film Festival. Please see this film which takes place in the ICU at Highland Hospital in Oakland and features Dr. Jessica Nutik Zitter. This is a must-see film that brilliantly depicts the conundrum that exists at the end of life when painful decisions must be made. By showing the real-life conversations that take place in the ICU between staff, family members and patients, a case is made for everyone to complete their advance directives and prepare their loved ones to honor their wishes at the end of life. But the painful process of decision-making becomes apparent as each individual struggles with the unknown and the unknowable in these dire situations.

The other topics covered this month include:

  • BMJ Online report that patients who receive hospice care for the last 6 months of life have better pain control, fewer hospital days, and are less likely to die in the hospital or ICU.
  • Researchers at John Hopkins found that their palliative care program led to  savings of ~ $19 million over 5 years in addition to improved quality of care and patient satisfaction.
  • Study originally published in Health Affairs and reported on Reuters online showed gaps in palliative care in the US. Read the article.
  • “What it feels like to die,” an article in The Atlantic discusses the active dying process from the patient’s perspective. Read the article.
  • Friends and Family Letter Project by Dr. VJ Periyakoil at Stanford includes 7 prompts for letter writers to leave messages for their loved ones. Read the article.
  • “7 Songs for a Long Life” documentary from Scotland that depicts how terminally ill patients use singing as therapy. Read the article.
  • The Friendly Atheist Julie Stahl reminds us not to impose our own religious or spiritual beliefs on those who are grieving and may not share your perspective. Read her blog.

Thanks for tuning in to the podcast! I hope you enjoy this information. If you feel inspired to offer a little support go to Patreon.com/eolu to join the community!

Until next week remember:

Face Your Fears.               BE Ready.               Love Your Life!!!

End of Life, EOLPodcast, Grief, Hospice, Spirituality

Ep. 56 End-of-Life Book Showcase!

In this episode Dr. Karen Wyatt highlights several excellent books about the end of life that have been sent to her by their authors. If you have considered starting an end-of-life book club (as mentioned in Episode 33) you’ll find many great books to choose from in this list. Here are the book titles and authors, along with links for learning more or purchasing the books:

  • “My Voice, My Choice: A Practical Guide to Writing a Meaningful Healthcare Directive”; by Anne Elizabeth Denny; www.anneelizabethdenny.com
  • “LastingMatters Organizer: Where Loved Ones Find What Matters Most”; by Barbara Bates Sedoric: www.lastingmatters.com
  • “Caring for Dying Loved Ones: A Helpful Guide for Families and Friends”; by Joanna Lillian Brown; www.caringfordyinglovedones.com
  • “Caregivers: Angels Without Wings”; by Peg Crandall; Link to Amazon.com
  • “Changing the Way We Die: Compassionate End-of-Life Care and the Hospice Movement”; by Fran Smith and Sheila Himmel; Link to Amazon.com
  • “Encountering the Edge: What People Told Me Before They Died”; by Karen B. Kaplan; Link to Amazon.com
  • “Spirit Matters: How to Remain Fully Alive with a Life-Limiting Illness”; by Judy Flickinger; www.judyflickinger.com
  • “Spiritual Perspectives on Death & Dying”; by Bernice H. Hill, PhD; Link to Amazon.com
  • “Living Consciously, Dying Gracefully: A Journey with Cancer and Beyond”; by Nancy Manahan and Becky Bohan; Link to Amazon.com
  • “Daddy this is it. Being-with My Dying Dad”; by Julie Saeger Nierenberg; Link to Amazon.com
  • “Leaning into Love: A Spiritual Journey Through Grief”; by Elaine Mansfield; www.elainemansfield.com
  • “Laughing in a Waterfall: A Mother’s Memoir”; by Marianne Dietzel; Link to Amazon.com
  • “Turn Right, Good Moon: Conversations With a Dying Mother”; by L. E. Moore; www.turnrightgoodmoon.com
  • “She Would Draw Flowers: Poems from a Young Artist Awakening to Life, Love and Death”; by Kirsten Savitri Bergh; Link to Amazon.com
  • “And Now, Still: Grave & Goofy Poems and a Bit of Prose”; by Reggie Marra; www.reggiemarra.com
  • “Facing Darkness, Finding Light: Life After Suicide”; by Steffany Barton, RN; Link to Amazon.com
  • “What to Do When You’re Dead: A Former Atheist Interviews the Source of Infinite Being”; by Sondra Sneed; Link to Amazon.com

I hope you’ll check out these amazing and inspirational books and include some of them in your book club or add them to your library!

 

End of Life, EOLPodcast, Hospice

Ep. 54 Film: Love in Our Own Time with Tom Murray

Join Dr. Karen Wyatt and her guest Tom Murray, director of the beautiful feature-length documentary Love in Our Own TimeThey will discuss the making of this film, which follows the lives of ordinary Australians as they face the big transitions of life: birth and death. “Love in Our Own Time is a film that speaks directly to its audience about the nature of life and death. It is a journey to the heart of what it is to be human that gives us all pause to question the lives we lead.” (from the film’s synopsis) Tom Murray reveals his own inspirations for creating the film and the transformation he experienced during the process.

In this interview you will learn:

  • How Tom Murray was inspired to create this film after living and working amongst the Yolngu Aboriginal people
  • How this film is being used in medical education settings to increase awareness about the end-of-life
  • How you might arrange a screening of Love in Our Own Time for your own community

Subscribe to End-of-Life University at http://www.eoluniversity.com so you can receive notification of all the fantastic new interviews on end-of-life issues.

Become a supporter of this podcast by making a donation of $1 or $2 per month at http://www.patron.com/eolu! Thanks!

Check out Dr. Wyatt’s books on Amazon:

End of Life, EOLPodcast

Ep. 48 July End of Month Update on the End-of-Life with Dr. Karen Wyatt

 

In this episode Dr. Wyatt thanks her newest Patreon supporter, Elaine den Hoed. If you’d like to make a small donation to help cover the expenses of this podcast and the EOLU interview series go to www.patreon.com/eolu. Your help is greatly appreciated!

This episode includes:

  • Nebraska’s plan to improve services for Alzheimer’s and dementia patients
  • “Memory Cafes” taking place in Minnesota
  • Study that looked at the utilization of Assisted Dying laws and found that none of the feared consequences have occurred: usage has been very low and there has been no “slippery slope” decline to euthanasia
  • University of Vermont study showed significant disparity between physicians’ estimations of prognosis and patients’ understanding of their own prognosis, pointing out the need for better  doctor-patient communication
  • Survey of Hem-Oncology MD’s showed that they feel patient’s unrealistic expectations of cure or prolonged life are the most common barrier to quality end-of-life care
  • Study that found Palliative Care conversations about patient prognosis created PTSD  for family members has been widely criticized for the way it was set up
  • Seniors are the fastest growing group of social media users
  • Article discussing mourning rituals among animals
  • Stephen Hawking declares “There is no afterlife.”
  • Photo of fatal motorcycle crash site in Kentucky shows what some believe is a “spirit” hovering over the site
  • Elderly couple in San Antonio who both have dementia died within 3 hours of one another while holding hands

Thanks for tuning in to the EOLU podcast! Be sure to come back every Monday and share these episodes with someone else who might find them helpful!

Remember:

Face Your Fears.          BE Ready.             Love Your Life.

End of Life, EOLPodcast, Hospice

Ep. 44 June End of Month Update on the End-of-Life with Dr. Karen Wyatt

As the month of June comes to an end Dr. Wyatt offers a summary of some of the interesting articles and posts on the end-0f-life that have been published during the month. The discussion includes:

  • A study from UNC showed that 3/4 of younger cancer patients (<65 years of age) with incurable disease receive  high rates of hospitalization and aggressive treatment during the last 30 days of life.
  • Dr. Ira Byock wrote an article “Why Do We Pay for Bad Healthcare” that was published online in STAT News. He questions why we continue to offer care with unproven benefits like feeding tubes in dementia patients and multiple-dose radiation for bone mets (rather than single-dose).
  • A survey of ICU nurses showed that very few are likely to be included in palliative care conversations with patients and their families. Obstacles mentioned are lack of training, not being asked for input by doctors, emotional toll of these discussions.
  • Arcadia Healthcare Solutions report that spending on people who die in a hospital is about 7 times greater than spending on patients who die at home.
  • Measure introduced in Congress by Rep. Michelle Lujan Grisham to create a national “Care Corps” (similar to Peace Corps) that would train young volunteer caregivers to meet the pending caregiver shortage.
  • Results of recent caregiver survey discussed which shows demographics of current family caregivers.
  • UK Survey reveals concerns of LGBT patients about accessing quality EOL care including fears of discrimination, concerns about getting spiritual needs met, unique family and support network structure, difficulty obtaining grief and bereavement support.
  • Reminder not to post “RIP” on social media sites after a death unless you are certain that family members and loved ones have been notified of the death.
  • Essay by Eric Weiner on his discover that in Bhutanese culture people contemplate their own death 5 times per day (and Bhutan has been named one of the happiest countries on the planet.)
  • Notable deaths in June: Muhammad Ali;  Dr.Dennis McCullough, founder of the Slow Medicine movement; mass shooting on June 12th in Orlando.
  • Tribute to Julianna Snow, 5 y.o. with progressive neurological disease who chose heaven rather than continuing painful treatments for her terminal disease.

Thanks for tuning in to the EOLU Podcast! I’m so honored to be able to share these thoughts and observations about the end-of-life with you.

If you are interested in offering your support to EOLU go to Patreon.com/eolu and contribute just $1 or $2 per month. You’ll receive some special bonuses if you offer your support! Also you can help out by going to iTunes and leaving a review, sharing this podcast with others, and sending me your comments!

End of Life, EOLPodcast, Grief, Spirituality

Ep. 42 The Shared Death Experience with Lizzy Miles

Today’s episode begins with a discussion about the mass shooting that just occurred in Orlando, Florida on June 12th. Dr. Wyatt shares some thoughts about why the Shadow side of life is emerging right now and what each of us must do to help our society: work on our own Shadow wounds and fears. She mentions her online home study course “Get Over It for Good: Healing the Hidden Wounds of Childhood” which you can check out at this link if you are interested:

Get Over it For Good Course

Next Dr. Wyatt introduces her guest Lizzy Miles who is a hospice social worker and who brought the first Death Cafe to the US in 2012. You’ll hear a little about how that took place and then Lizzy will tell the story of a Shared Death Experience she had when her aunt was dying. This interview will cover:

  • the definition of an SDE
  • how SDE’s differ from NDE’s
  • why it is important to accept the metaphysical experiences of patients and family members near the time of death
  • myths surrounding the dying process

Remember to tell your loved ones how much they mean to you TODAY! Life is short so don’t waste a moment of it!

Go to Patreon.com/eolu if you are interested in supporting this podcast and the EOLU interview series by donating $1 or $2 per month. Also be sure to share this podcast with your friends and leave reviews on iTunes if you enjoy the podcast!

 

 

End of Life, EOLPodcast, Hospice, Spirituality

Ep. 41 Creating Sacred Space in the Midst of Chaos

Today Dr. Karen Wyatt thanks her new Patron Leslie Robertson for her support of EOLU on the donation page at patreon.com/eolu . Leslie is working on a project to train unemployed women in their 40’s-60’s to do end-of-life work. If you become a patron, as well, Dr. Wyatt will mention your name and your work in a future episode.

Next Dr. Wyatt talks about the stresses endured by hospice workers in this time when both healthcare and death have become a business. She discusses the impact of late admissions to hospice on the workers who must care for patients and their families when there is only a short time to meet their needs. This talk includes:

  • Finding meaning in dying even when you work for a “business”
  • The sacredness inherent in the dying process
  • A helpful mindset for dealing with the stress of end-of-life work
  • How to be a channel for love and compassion rather than generating them from your own heart
  • Body/Mind/Spirit practices for self-care to ensure that you can help create sacred space for patients
  • The Lovingkindness Blessing:
    • May I be at peace.
    • May my heart remain open.
    • May I realize the beauty of my own true nature.
    • May I be healed.
    • May I be a source of healing for this world.

Thanks for listening! Remember to leave reviews for this podcast on iTunes and help support EOLU at patreon.com/eolu.

End of Life, EOLPodcast

Ep. 37 Creating a Support Community as an End-of-Life Worker

 

Today Dr. Karen Wyatt discusses some ideas for building a support community for end-of-life workers and people interested in death and dying. Working in this field can be rather lonely at times as our society still fears and avoids the subject of death. But we need a network of support around us in order to do this challenging work. So here are some ideas for creating our own community of support:

  • Attend a Death Cafe. Learn more and out if there is a Death Cafe in your area by searching the Death Cafe website: www.DeathCafe.com
  • If there is no face-to-face Death Cafe in your area consider calling in by telephone to the Virtual Death Cafe, which generally meets on the 2nd Sunday of each month. Learn more at www.eoluniversity.com/death-cafe
  • Start your own Death Cafe. If you feel inclined to become a Death Cafe host (no specific training is required) you might want to start your own and truly benefit your community. Get completes Guidelines for starting a Death Cafe at www.DeathCafe.com/how
  • Use Social Media sites to get connected with others:
    • On Facebook search for these pages or public groups (then “Like” the page or ask to become a member of the group): Slow Medicine, Afterlife Awareness, Death Cafe, Death Midwifery in Canada, End-of-Life University, Death Expo
    • Linked-In: search for groups based on interests such as Hospice, Palliative Care, Chaplain Services, Grief, End-of-Life
    • Twitter: follow hashtags like #EOL #hpm #eolchat #dwd #eolcare #funeralplanning #deathcafe #hospice (depending on your interests)
  • Start a death and dying Meetup Group. You can create your own curriculum for a meetup (unlike Death Cafe that has no agenda) and include films, speakers, panel discussions, field trips. Go to www.Meetup.com to see if there is already a meetup in your area or to start one of your own.
  • Teach a class in your community. Consider teaching a death and dying class at a local community college if you have the credentials for it, or offer a class at your local senior or community center. Read this blog for some tips for teaching such a course HERE.
  • Join an organization. I highly recommend that you look into joining the National Home Funeral Alliance, which offers free registration, monthly conference calls and an annual face-to-face conference. You don’t have to be a home funeral guide to join and you will find many, many like-minded people there! Learn more about the NHFA at www.homefuneralalliance.org
  • Listen to educational interviews like this podcast or the interviews on the End-of-Life University Seminar Series. Click HERE to subscribe to the podcast and HERE to sign up for the seminar series.

Remember to support EOLU at patreon.com/eolu, tune in every Monday for a new episode, and leave your comments and reviews!

Face Your Fears.      BE Ready.      Love Your Life.

End of Life, EOLPodcast, Grief, Hospice, Spirituality

Ep. 36: Tribute to Maria Dancing Heart Hoaglund

This episode is dedicated to the memory of Rev. Maria Dancing Heart Hoaglund, hospice chaplain and spiritual counselor who authored the books The Last Adventure of Life: Sacred Resources for Living and Dying from a Hospice Counselor and The Most Important Day of Your Life: Are You Ready? Maria died tragically after being struck by a car while walking in a crosswalk.

Maria has been a beloved member of the end-of-life community and in this episode Dr. Wyatt shares her personal recollections of Maria, reads excerpts from Maria’s books and plays a clip from Maria’s interview for End-of-Life University in 2013. Whether or not you have met Maria in the past, you will become acquainted with her beautiful soul and enlightened spiritual wisdom through the messages in this episode.

Many blessings to all who love Maria and feel the pain of her absence in this physical plane. Maria left a beautiful legacy for each and every one of us that will continue to guide and inspire our work for the future.

Maria’s books are available on Amazon:

The Last Adventure of Life

The Most Important Day of Your Life

End of Life, EOLPodcast

Ep. 34 Begin the Conversation with Kimberly Paul

Today’s focus is on advance care planning as Dr. Wyatt shares an interview with Kimberly Paul of Lower Cape Fear Hospice, who is the creator of the Begin the Conversation Workbook and Toolkit. You’ll learn about National Healthcare Decisions Day and Dr. Wyatt’s 10-Day SMART Decisions Challenge, which you can join for free at www.eoluniversity.com/challenge and get your own advance directives done with Dr. Wyatt’s guidance.

In the interview Kimberly will share:

  • How the BTC Toolkit can be used to introduce the concept of Advance Care Planning to people of all ages
  • The 7 step process recommended in the BTC Workbook
  • How Begin the Conversation differs from other advance care planning resources
  • How to access the tools offered by BTC

Learn more about BTC at www.begintheconversation.org

Sign up for End-of-Life University at www.eoluniversity.com or by texting EOLU to 38470.

Remember to check out the Patreon page for this podcast and make a donation if it suits you at www.patreon.com/eolu

Thanks for listening! Take care and get your advance directives done!

End of Life, EOLPodcast

Ep. 31 March End of Month Update on the End-of-Life with Dr. Karen Wyatt

Dr. Karen Wyatt discusses what’s new and noteworthy in the end-of-life arena this month:

  • Medscape article reveals that 1/3 of all people in the US with advance directives actually request more medical intervention at the end-of-life, rather than choosing to limit medical intervention; question: What is “futile” care?
  • Helsinki, Finland project allows young people to live at low cost within senior living centers in exchange for interacting with the elderly residents
  • PEACH program in Toronto provides mobile palliative care to the homeless
  • France has a “deep sleep bill” allowing terminal sedation that has passed the lower house of parliament
  • National Geographic article shows interesting death customs of Torajan people of Indonesia
  • Demonstration project for curative care occurring simultaneously with hospice care may be doomed because criteria for participation is too narrow and numbers are too small
  • Video game “That Dragon, Cancer” has been released
  • Stanford Letter Project is an interesting resource for creating advance directives in the form of a letter to physician, family members
  • Parting.com has an interactive map that shows funeral costs in each state of the US; discussion about living funerals
  • Tribute to 13 yo Delaney Clements who died this week and left us with a beautiful , joyful video expressing her wishes for her funeral