End of Life, EOLPodcast, Hospice

Ep. 216 Hospice Under Threat: How to Protect Patient-Centered End-of-Life Care with Jeff Lycan

Learn about the “dark side” of the hospice business and how to identify and support organizations that are truly patient-centered.

PodcastEOLU19Lycan

My guest Jeffrey Lycan has spent the last 21 years of his  hospice and palliative care nursing career as an advocate for improving care and quality of life for patients at the end of life. He will discuss the recent alarming reports issued by the OIG (Office of the Inspector General) about instances of negligent care in some hospices, the worrisome trend toward profit-centered rather than patient-centered care, and how to support community-based hospices that are preserving Cicely Saunders’ legacy of end-of-life care. Learn about the Why It Matters Campaign he has started:

www.ohioshospice.org/whyitmatters

Listen here:

 

This episode includes:

  • The two OIG reports from July 2019 that exposed fraudulent and negligent care in some hospices (see links below)
  • What a “deficiency” in a hospice survey actually means
  •  Business changes in the hospice industry that have contributed to flaws in the care being offered
  • How some hospices now focus on profit first rather than patient care first
  • How profiteering harms the hospice system, patients and staff
  • New MedPAC proposal for lowering the annual per patient cap for hospices and why it may be a good thing
  • How consumers can choose the best hospice for their loved ones
  • How to register a complaint about hospice care
  • The campaign Why It Matters: Preserving the Legacy of Hospice

As originally championed by Cicely Saunders, MD, the founder of the modern hospice movement, the hospice model of care was based on providing end-of-life care with both compassion and science, and offering this care through engaged community-based, not- for-profit programs.

-from Why It Matters Website

ANNOUNCING:

FREE Webinar with Jane Barton: The Loneliness Epidemic

Register here.

BartonWebinarloneliness

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eoluespecially Susan Baumhammer, your contribution means  everything to me!

End of Life, EOLPodcast, Hospice

Ep. 201 Nurturing Touch as a Tool for Care of Hospice Patients with Elizabeth Erbrecht

Learn about the power of touch to bring comfort and dignity to patients at the end of life.

PodcastErbrecht

My guest Elizabeth Erbrecht is a massage therapist and end-of-life doula who specializes in touch and massage for the dying. We’ll talk about the importance of touch for all of us and especially for patients at the end of life. Elizabeth shares information from her guide book Nurturing Touch for the Dying and how to get comfortable touching our dying patients. Learn more at her website:

www.elizabetherbrecht.com

nurturingtouch

Get the book here.

Listen here.

 

This episode includes:

  • The importance of touch for human survival and wellbeing
  • The common fears of touching dying patients
  • How to use touch to support a dying loved one in a gentle, safe way
  • What to consider before using essential oils on a dying patient
  • “Safe zones” for initiating touch with patients
  • Why the ability to be present is essential for the power of touch
  • How simple touch can help people relax and let go during the active dying process

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eolu!

EOLPodcast, Hospice, Spirituality

Ep. 196 The Doctor Who Became a Doula to Improve End-of-Life Care with Jackie Yeager MD

Learn how death doula training helped this physician find more meaning and fulfillment in her end-of-life medical practice.

PodcastYeager

My guest Dr. Jackie Yeager is a hospice and palliative care physician who has also trained as a death doula in order to provide the best possible care to her patients. She discusses her passion for slow medicine, especially at the end of life, and describes a new course she is launching on medical information for caregivers and death doulas. Learn more about the Informed Caregiver Course at her website:

www.informedcaregiver.com

Listen here:

 

This interview includes:

  • Why Dr. Jackie decided to become a death doula
  • What is “slow medicine” and why it is important
  • How mindfulness and spiritual practice help her be a better doctor
  • How death doulas augment traditional hospice care
  • How physicians struggle with grief over the deaths of patients
  • The scope of practice for a death doula
  • What is included in Dr. Jackie’s Informed Caregiver Course

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eolu, especially my new Patrons: Kimberly Ogle, Linda McCarthy and Sherilee Bakken!

 

 

End of Life, EOLPodcast

Ep. 175 The Highlights of 2018 and What’s New for Next Year!

Learn about the best of EOLU in 2018 and how to catch up if you missed any of these events!

PodcastNewYear

“Death Education for Everyone” was the theme for 2018 and we’ll review all the great educational content that was provided in the past year. It’s not too late to listen in on the best webinars and interviews of the year before we get started on a brand new season of EOLU! Check out the links for the events you’ve missed in the description below.

Happy New Year to each and every one of you!

 

ANNOUNCEMENTS:

BIG NEWS!! Starting in 2019 the EOLU Interview Series will merge with the EOLU Podcast – so all the great interviews you are used to hearing on the interview series will now be available as podcast episodes. This means you can subscribe to the podcast and listen to the interviews on your phone while you are on the go! In addition you’ll be able to hear the solo episodes (like this one) where I share my wisdom, inspiration, and ideas for embracing the end of life and living fully today.

You can subscribe to the podcast at one of the following links (whichever podcast app you use):

Subscribe on Apple Podcasts (Click “View in iTunes” then click “Subscribe”)

Subscribe on Stitcher

You can also listen to the episodes at www.eolupodcast.com.

Thanks for all of your support in 2018! I appreciate you for listening in and encouraging me to keep going. And I’m especially grateful to those of you who have become patrons on my donation page at Patreon.com/eolu: you make my heart sing!

FEATURE PRESENTATION:

2018 has been a wonderful year for EOLU that began with a goal of supporting “Death Education for Everyone.”  In support of that goal the following programs were created:

  • A Year of Reading Dangerously online reading group; we’ve read one book a month this year and held 9 live book discussions with authors of the books in attendance. Nearly 1,000 readers from around the world have joined together to read the same book at the same time. We’ve all learned a lot about death, dying and the afterlife and have had fun in the process!

View the books and discussions from 2018 here.

Join the reading group here (if you haven’t already signed up!)

  • Teaching Guidelines for a Death and Dying Class – this free pdf was made available to hundreds of people interested in teaching about end of life issues. You can still get the Guidelines here.
  • Workshop on How to Teach a Death and Dying Class successfully helped launch dozens of classes around the country and culminated in 5 students creating online webinars, which you can view here.
  • Promoted Cathy Zheutlin’s new film “Living While Dying” as an excellent tool for teaching community members about death and dying. Learn more about the film here.
  • Co-hosted 3 teaching webinars that were very well received. If you missed these there’s still time to watch:
    • “End-of-Life Doula Training for Caregivers and Volunteers” with Suzanne O’Brien of Doulagivers.com. View the webinar here.
    • “Bridge Time: The Consequences of Change” with Jane Barton of Cardinalife.com; she talks about how caregivers can become more resilient in the face of change. View the webinar here.
    • “Collaborative Care for Caregivers: How to Ask for Help” with Jane Barton. View the webinar here.

The “best” interviews of 2018 (though they were all fantastic!);

  • Hansa Bergwall talking about the WeCroak app he created for smart phones that reminds you of your mortality 5 times a day.  Listen here.
  • Dr. Bob Uslander who has pioneered a new concierge model of end-of-life care, which could be a game-changer for the medical system and how we help patients navigate their last days. Listen here.
  • Alua Arthur of Going With Grace talked about the legal issues that can occur after death and how to prepare for them in advance. Listen here.
  • Deanna Cochran RN and Suzanne O’Brien RN both talked about the creation of the End-of-Life Doula Council by the NHPCO and the National End-of-Life Doula Alliance, which now provides certification training for doulas. Listen to Deanna’s interview here. Listen to Suzanne’s interview here.
  • Cheryl Jones of Good Grief Radio Show talked about end-of-life issues and the LGBTQ community. Listen here.
  • Jonathan Bartels RN discussed The Medical Pause which he initiated to show respect after the death of a patient at his hospital and has now spread around the world! Listen here.
  • Michael Hebb talked about founding Death Over Dinner. Listen here.
  • Joe Primo of Good-Grief.org discussed helping children with grief and how to include them in the experience of death and dying. Listen here.

For 2019 I’ll still be focusing on education as the primary goal of EOLU along with collaboration with other change-makers and this unifying message:

Let’s do dying and death better!

  • A Year of Reading Dangerously will continue! View the book list here.
  • There will be another workshop on How to Teach a Death and Dying Class (stay tuned to future podcasts for more information)
  • More webinars (TBD)
  • Speaking engagements (announcements coming soon)

Thank you for listening to the podcast and for leaving reviews on iTunes (they make a big difference!)

Tune in every week for a new episode! Until next time remember:

Face Your Fear         BE Ready          Love Your Life

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End of Life, EOLPodcast

Ep. 165 Part 4: The Palliative Care Team Chaplain with Stephanie Ryu

PodcastPallRyu

 

 

ProvidenceRyuITIn Part 4 of our series on palliative care I share an interview with Stephanie Ryu a palliative care chaplain. She’ll discuss her role providing spiritual support to patients with advanced illness. 

Learn more about palliative care here.

ANNOUNCEMENTS:

madrid-2713916_640My awesome Spain trip is at an end as this episode airs and I’ll be making my way back to Colorado! You can check out all of my pictures on Instagram at kwyattmd!

Tune in next week to hear my stories from Spain!

FEATURE PRESENTATION:

In this presentation Stephanie Ryu will discuss her role as a chaplain on the palliative care team.

You will learn:

  • How the work of a palliative care chaplain differs from other chaplaincy work
  • The role of spiritual care in the whole-person approach to illness and healing
  • The importance of spirituality at the end of life
  • How chaplains assist patients of all religions and those who follow no religion

Stephanie Ryu is a graduate of St. Xavier University and Fuller Theological Seminary. She completed CPE Residency at Providence St. Joseph – Burbank in 2012-13 along with a 6-month fellowship in hospice and palliative care. She now serves as a Palliative Care Chaplain for Providence Health and Services.

Tune in next week for a brand new episode!! If you like this content consider leaving a review on iTunes.

Until next time …

Face Your Fear         BE Ready         Love Your Life

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End of Life, EOLPodcast

Ep. 164 Part 3: The Palliative Care Team Social Worker with Andrea Strouth MSW

PodcastPallStrouth

 

 

ProvidenceStrouthIn Part 3 of our series on palliative care I share an interview with Andrea Strouth MSW a social worker on the palliative care team. She’ll talk about her role on the team to help us understand why social workers play an important part in the care of patients with advanced illness.

Learn more about palliative care here.

ANNOUNCEMENTS:

sagrada-familia-392009_640At the time of this broadcast I’m still enjoying my Spain trip – probably eating some tapas in Barcelona! I’ll be returning home in a few weeks but meanwhile check out my photos on Instagram at kwyattmd!

 

 

FEATURE PRESENTATION:

In this presentation Andrea Strouth LCSW, MSW will discuss the role of the social worker on the palliative care team.

You will learn:

  • The duties of the palliative care team social worker
  • Why palliative patients might need social work services
  • How the multidisciplinary palliative care team functions as a unit
  • The rewards of working on a palliative care team

Andrea Strouth received her MSW from the University of Pennsylvania. She is currently working at Providence Health & Services-Southern California to help develop their outpatient palliative care program. Previously, Andrea worked at the Abramson Cancer Center at Penn Medicine and in the Medical and Cardiothoracic Intensive Care Units at Hahnemann University Hospital in Philadelphia, Pennsylvania. Her passion lies in advanced care planning and education surrounding end-of-life issues to ensure patients feel empowered in every aspect of their care.

Tune in next Monday for Part 4 of this series. If you find this content helpful please share it with other and consider leaving a review on iTunes! Also your contributions to my page at Patreon.com/eolu are always appreciated!

Until next time …

Face Your Fear         BE Ready           Love Your Life

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End of Life, EOLPodcast

Ep. 163 Part 2: The Palliative Care Team Nurse with Rebekah Riemer RN

PodcastPallRiemer

 

 

Providencebeka (002)In Part 2 of our series on palliative care I share an interview with Rebekah Riemer a palliative care nurse. She’ll talk about her role on the team and why she decided to specialize in palliative care nursing.

Learn more about palliative care here.

ANNOUNCEMENTS:

flamencoMy Spain trip continues this week as I visit more of Andalucia and take in some flamenco dancing.  I’ll be returning home in a few weeks but meanwhile check out my photos on Instagram at kwyattmd!

 

FEATURE PRESENTATION:

In this presentation Rebekah Riemer RN will discuss the role of the nurse on the palliative care team and her own story of being called to work in palliative.

You will learn:

  • How Beka was introduced to palliative care as a family member of a patient and a patient herself
  • The typical duties of a palliative care nurse
  • How palliative care meets the physical, emotional and spiritual needs of patients and their families
  • The most common misperceptions about palliative care for the public and for healthcare providers

Rebekah “Beka” Riemer, RN, CCRN was an intensive care nurse for over eight years, working in surgical as well as medical ICUs and currently works as the Nurse Coordinator on the Inpatient Palliative Care Team at Providence Little Company of Mary in Torrance, California. She is on the team working towards the recertification of the Joint Commission’s Advanced Certification for Palliative Care. She serves on the Critical Care Committee representing nursing and Palliative Care, as well as on the Ethics Committee and Mortality Committee.

In addition, Ms. Riemer volunteers at the Leukemia Lymphoma Society of America (LLSA), Los Angeles, CA chapter. In 2013, she was 1st runner up for Woman of the Year, as she raised over $50,000 for leukemia/lymphoma research for the LLSA. Ms. Riemer has been an ELNEC-Critical Care faculty member for over five years.

She also spoke at the National Teaching Institute for Critical Care Nurses in 2017, speaking about the importance of integrating Palliative Care in Critical Care settings. She will also be published in the 5th edition of the Oxford Textbook for Palliative Care Nursing in the seventh chapter titled, “ Interdisciplinary Palliative Care Teams: Specialists in Delivering Palliative Care”.

Tune in next Monday for Part 3 of our series on palliative care! If you enjoy this content please share it with others who might find it helpful and consider leaving a review on iTunes!

Until next time …

Face Your Fear       BE Ready        Love Your Life

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End of Life, EOLPodcast, Hospice

Ep. 162 Part 1: The Palliative Care Team Physician with Colin Scibetta MD

PodcastPallScibetta

 

 

ProvidencescibettaThis episode is the first of a 4-part series that introduces you to the members of a palliative care team. Today Dr. Colin Scibetta discusses his role as the physician on the team and how palliative care differs from hospice care. In future episodes you’ll hear from the team nurse, social worker and chaplain.

 

ANNOUNCEMENTS:

grenade-1285671_640As this episode airs I am enjoying a trip through Spain, including cycling in the Andalucia region! I’ll be back home in a few weeks to report on the trip. Follow me on Instagram to see my photos at kwyattmd or this link: https://www.instagram.com/kwyattmd/

 

FEATURE PRESENTATION:

This interview will cover:

  • What palliative care consists of
  • The difference between palliative care and hospice
  • The benefits of palliative care for patients
  • How the whole-person approach of palliative medicine also benefits care providers
  • Why Providence Institute for Human Caring (et al) was awarded the Circle of Life Award from the American Hospital Association

 

Colin Scibetta MD is a fellowship-trained palliative medicine physician who complete his undergrad in neuroscience and biology at Wesleyan University. He then moved to Ecuador where he worked on a health initiative for indigenous communities impacted by oil development. Dr. Scibetta did his undergraduate medical training at the University of California, San Francisco School of Medicine, where he also completed an internal medicine residency and a fellowship in hospice and palliative medicine.

Remember to tune in next week for Part 2 of this palliative care series! If you enjoy this content be sure to share it with others who might find it helpful and consider leaving a review on iTunes. 

Until next time …

Face Your Fear          BE Ready           Love Your Life

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End of Life, EOLPodcast

Ep. 161 Needs of the LGBTQ Community at the End of Life with Cheryl Jones

PodcastJones

 

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CherylJonesheadshotIn this episode I share an interview with Cheryl Jones, host of the Good Grief Radio Show, therapist and author of the newly-released novel An Ocean Between Them. We talk about the important subject of meeting the needs of members of the LGBTQ community at the end of life, which is part of the story told in her new book. Learn about Cheryl’s work here.

Get her book here.

ANNOUNCEMENTS:

sevilleI’ll be leaving for Spain in just a few days! While I’m traveling you will be able to listen to a 4-part series on Palliative Care during this podcast so you won’t miss a single episode! If you’re interested you can follow my photos on Instagram at kwyattmd!

A HUGE THANK YOU to my latest supporters on Patreon.com/eolu: Lisa Milton, Debbie Hall and Christine Hazard Phillips. Your contributions are greatly appreciated and help keep this podcast and the EOLU Interview Series on the air. Join the team to get special bonus content!

CSU Institute for Palliative Care is holding a National Symposium on Palliative Care in San Diego October 11-12. Go to CSUpalliativecare.org to learn more.

FEATURE PRESENTATION:

My guest Cheryl Jones is a grief counselor, host of the Good Grief Radio Show on VoiceAmerica, and the author of the newly-released novel An Ocean Between Them. We will discuss the challenges that LGBTQ people experience in receiving care at the end of life and ways to make our organizations and facilities more inclusive.

In this interview you will learn:
  • Why members of the LGBTQ community access less healthcare than the general populatioN
  • Obstacles faced by LGBTQ individuals in receiving care in residential facilities, hospices, hospitals
  • Why a durable medical power of attorney is an essential document for all LGBTQ individuals
  • How the organization SAGE advocates for LGBTQ seniors
  • How to find common ground in end-of-life care even when we don’t agree on lifestyle choices
  • About post-traumatic growth and why it’s important to foster
  • Ways to create an LGBTQ-supportive environment in your organization or business
  • About Cheryl’s novel that addresses the challenges of LGBTQ relationships with family at the end of life

Cheryl Jones is the host of the radio show Good Grief. She is also a grief counselor and cancer educator. During her education as a Marriage and Family Therapist, her first wife was diagnosed with Multiple Myeloma, which was at the time a uniformly terminal illness with a six month to one year prognosis. In the eight + years that followed, Cheryl engaged daily in the work of preparing for her death. She received training during this period from Stephen and Ondrea Levine (Who Dies and Grieving Into Life and Death) and Richard Olney (founder of Self-Acceptance Training). After her wife’s death, Cheryl immersed herself in her own multifaceted grief, surprised by frequent moments of joy.

Cheryl is a consultant and group leader at the Free Therapy Program of the Women’s Cancer Resource Center, where she developed, manages and teachies in their Continuing Education program. She has trained extensively with Erving Polster, leader in the field of gestalt therapy and author of Everybody’s Life is worth a Novel. She was Clinical Director at the Alternative Family Project, which served the therapeutic needs of LGBTQ families in San Francisco. Finally she is the author of the recently published novel: An Ocean Between Them.

Get the book here.

Website: www.weatheringgrief.com

Tune in every Monday for a new episode (even when I’m traveling!) If you enjoy this content please share it with a friend and consider leaving a review on iTunes.

Until next time …

Face Your Fear             BE Ready              Love Your Life

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End of Life, EOLPodcast

Ep. 157 “Journey’s End”: Stories for Everyone About Death with Julie Saeger Nierenberg and Victoria Brewster

Learn about a helpful book of stories dealing with death, dying and the end of life and how you can contribute your own story to the next book in the series.

PodcastJulieVikki

 

 

julievikkicollage

In this episode I present my conversation with the co-editors and co-curators of the book Journey’s End: Death, Dying, and the End of Life – Julie Saeger Nierenberg and Victoria Brewster

Learn more about the book at journeysendbooks.com

ANNOUNCEMENTS: 

SpCare-AuthPresence-EoL-UnivThis episode is sponsored by Authentic Presence training for healthcare providers from the Spiritual Care Program.  You can receive a certificate in contemplative end-of-life care by completing this series of three courses, including an 8-day residential immersion retreat. Highly recommended!

Learn more here.

 

FEATURE PRESENTATION:
Today Julie Saeger Nierenberg and Victoria Brewster join me to talk about their book journeysendcoverJourney’s End: Death, Dying, and the End of Life, which is a compilation of quotes, stories and resources that look at death from various perspectives. In our conversation we discuss:

  • How Julie and Vikki ended up collaborating on this book
  • How the stories in the book are organized:
    • Personal Stories of Professionals and Lay People
    • Professional Support and Caregiving Perspectives
    • Funeral Home, Post-Death and Alternative Burial
    • Grief and Bereavement
  • How they chose the contributors for the book
  • The feedback they’ve received from readers
  • How this book of stories can be useful in many settings for both professionals and lay people
  • How to submit a story for the next book in the series which will feature various cultural, ethnic and religious perspectives on death and dying

Read more about the book here.

Get the book here!

Tune in every Monday for a new episode! If you enjoy this content please share it with others  and consider leaving a review on iTunes!

Until next week:

Face Your Fear            BE Ready           Love Your Life

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End of Life, EOLPodcast

Ep. 152 Many Ways to be of Service to the Dying

 

PodcastServicehands

wrmflatcoverIn this episode I share some thoughts about how to get involved in the end-of-life movement if you have recently become interested in death and dying. You’ll hear about my best ideas for contributing to change in the way people die and offering your service to others.

Check out my book to read stories about hospice patients I cared for.

 

ANNOUNCEMENTS:

SpCare-AuthPresence-EoL-UnivWelcome to our new sponsor: Authentic Presence Training from the Spiritual Care Program.  Authentic Presence brings together practical contemplative resources with the knowledge and skills of modern hospice and palliative care. Suitable for professionals from all faith traditions or none, the course draws its inspiration particularly from Buddhist contemplative practice, the acclaimed classic The Tibetan Book of Living and Dying, the work of the Dalai Lama, as well as contemplative neuroscience. Learn more here.

Thank you also to our new supporter on Patreon.com/eolu: Althea Halchuk! I’m deeply appreciative of your contribution to help keep this podcast and the EOL University Interview Series on the air! Go to Patreon.com/eolu to learn more and sign up.

obrienwebinarJoin me and my guest Suzanne O’Brien RN for a free webinar: “EOL Doula Training for Caregivers and Volunteers” on Tuesday July 24th at 5 pm Pacific/8 pm Eastern. Register here and you’ll receive the replay if you can’t attend live.

 

FEATURE PRESENTATION:

Learn about these opportunities to be of service to the dying in many different capacities:

  • Work as a professional in hospice or palliative care (call your local hospice/palliative care program to see if you have the credentials needed and to learn about any training offered):
    • physician
    • nurse
    • nurse practitioner
    • nursing assistant
    • social worker
    • chaplain
  • Become a volunteer – for those with no medical training:
    • Hospice volunteers are always needed (call your local hospice for more information)
    • No One Dies Alone – a program to ensure that each dying patient in the hospital has companionship if desired at the end of life. Listen to my interview here and learn more about NODA here.
    • Threshold Choir – for those who love to sing; offer support and inspiration to the dying and their families through vocal music. Listen to my interview here and learn more about Threshold Choir here.
    • Twilight Brigade – to provide end-of-life support to veterans. Learn more here.
    • Pet Therapy for Hospice Patients – if you have a special pet and would like to receive training to provide visits to patients. Learn more in this interview.
    • Seek out other opportunities in your community like Meals on Wheels, hospital or nursing home volunteer programs, church-related visitation programs
  • Become an End-of-Life Doula – check out the training mentioned above with Suzanne O’Brien and find out if this work is a good fit for you. Learn more here.
  • Start a caregiver training program – the need for in-home caregivers is going to increase dramatically over the next decade. Consider becoming a caregiver trainer to help your community meet this need.
  • Teach a death education class – there is currently a great need for education about Slide01death and dying in our society. Consider teaching your own class or workshop to provide information to others in your community. Get the Teaching Guidelines for a Death & Dying Class here.

 

 

  • Create a Community Event to inspire people to learn more about the end of life:
    • Film series – listen to ideas here
    • Book club – read about A Year of Reading Dangerously online reading group here
    • Death Cafe – learn more here
    • Speaker series
  • Start a Social Model Hospice – to provide non-medical residential support and caregiving for those who are without a proper home at the end of life. Listen to the interview here.

Whatever inspires you I hope you will gather your courage and take the next step to get involved in the end-of-life movement. Your help is needed!

There will be a new episode next Monday. If you enjoy this content please share it with others and consider leaving a review on iTunes. Thank you for your interest and support!

Until next time:

Face Your Fear            BE Ready             Love Your Life

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End of Life, EOLPodcast, Hospice

Ep. 123 Goals and Wishes for 2018: Let’s “Be Good at Death”

Hear my far-reaching dreams and ideas for changing the way people die in the U.S. in 2018.

PodcastWishes18

goals2018In this episode I talk about some of my own personal goals for the New Year and then discuss a list of ideas for ways in which we need to improve all aspects of the end of life. Get some inspiration for steps you can take within your own community and in your own personal life to “Be Good at Death.”

 

ANNOUNCEMENTS:
A Year of Reading

I’ve started a new year-long reading group called A Year of Reading Dangerously for 2018! We’ll be exploring death and the afterlife through books that hopefully will inspire us and stretch our boundaries. Sign up to receive a monthly email with the book selection for the month and a downloadable reader’s discussion guide. Join the fun!

Sign up here.

A HUGE thank-you to my latest supporters: Claire Turner and Dr. Leslie Robinson. Your contribution is greatly appreciated as it helps defray the costs of producing and broadcasting this podcast and the End-of-Life University Interview Series, but it also provides me with much-needed emotional and spiritual support! To donate as little as $1 per month go to Patreon.com/eolu.

There is a new pledge level on Patreon-the Platinum level-where for a donation of $5 per month you’ll receive replays of ALL of the End-of-Life University Interviews for 2018. So check it out now!

FEATURE PRESENTATION:

What we need to do to “Be Good at Death” in 2018″:

  1. Policy Level changes needed:
    1. Improve reimbursement for Palliative Care
    2. Stabilize and improve reimbursement for Hospice Care
    3. Establish a system for paying family caregivers
  2. Medical System changes needed
    1. Integrate Palliative Care into Primary Care and therefore …
    2. Increase home-based palliative services
    3. Rank hospitals according to the quality of end-of-life care provided (based on an article by Dr. Haider Warraich from Duke University). Dr. Warraich’s criteria for this ranking include:
      1. “percentage of patients with a documented health care proxy
      2. percentage of patients who receive heroic measures like cardiopulmonary resuscitation or cardiac defibrillation
      3. appropriate use of hospice and palliative care
      4. the likelihood of a family recommending the hospital for end-of-life care
      5. whether patients’ location of death was concordant with the place in which they had wanted to die
      6. availability of around-the-clock spiritual resources
      7. the training the medical team receives for dealing with the medical and psychosocial issues that arise when death is imminent”   ((Thank you Dr. Warraich for this fabulous idea!))
  3. Medical Education changes needed
    1. Train all medical providers in palliative care (at least a one-month rotation) regardless of specialty
    2. All medical students work with dying patients in at least one rotation
    3. Teach better conversational and listening skills to medical providers
    4. Help medical providers process their own fears and biases toward death and their repressed grief
  4. Community changes needed
    1. Create adjuncts to hospice care:
      1. Non-medical social hospices
      2. All-volunteer non-medical hospice services
      3. Hospices train volunteer death doulas to augment the care currently being provided
    2. Establish Caregiver Education programs in the community
    3. Create a No One Dies Alone program in hospitals and nursing facilities
    4. Improve community education about death and dying through:
      1. Death Cafes
      2. Book clubs
      3. Workshops
      4. Advance Directive courses
      5. Death and Dying classes for high schools, colleges and universities
  5. Individual changes needed:
    1. Continually work on our own fear and resistance to death
    2. Explore our unhealed and repressed grief (consider travel to help with grief)
    3. Keep learning about death
    4. Talk about death with others in our social circle
    5. Make death part of your every day life 
    6. Teach children about death and help them navigate through loss and grief

HAPPY NEW YEAR!!

Come back each Monday for a new episode! Visit Patreon.com/eolu if you’d like to become a supporter and leave a review on iTunes if you enjoy this podcast.

Until next week:

Face Your Fear          BE Ready         Love Your Life

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End of Life, EOLPodcast, Hospice

Ep. 119 The Dying in America Project with Carolyn Jones

Learn about this documentary film project that examines the dying process through the eyes of nurses, directed by award-winning filmmaker Carolyn Jones.

PodcastCaJones

Carolyn_JonesIn this episode I share an interview with Carolyn Jones, an amazing filmmaker who has turned her attention to the death and dying process here in the U.S. Through interviews with nurses all around the country and by following 4 patients on their end of life journeys Carolyn hopes to demystify the dying process and spur conversation about how to do it better.

Learn more at www.dyinginamerica.org

ANNOUNCEMENTS:

downloads_wordmark_white_on_coralMany thanks as usual to all of the supporters who have made donations at Patreon.com/eolu! I am forever grateful for your generosity. You can become a patron for just $1 or $2 per month by signing up at Patreon.com/eolu.

I’d also like to thank all the listeners who have written in over the past few months to express their gratitude for this podcast and for the EOL University Interview Series! I couldn’t do this without you showing up to listen in and join the conversation. Thank you to Susan O’Brien, Terry Lindsley, Don Dahlheimer, Karen Britton, Marzette Ellis, and Louise Kelly for your messages of support! 

FEATURE PRESENTATION:

Today I welcome Carolyn Jones an award-winning filmmaker who has created the Dying in America Project. Her project consists of interviews with 50 hospice and palliative care nurses, and will follow the journeys of four hospice patients when it has been completed. Carolyn will share her inspiration for the project and the goals she has for the future.

In this interview you will learn:

  • How Carolyn’s past experiences led to this project
  • How Carolyn created the Dying in America videos
  • What can be learned from the Dying in America website
  • How Carolyn hopes this project will help change the way we die in this country

Carolyn Jones is an award-winning photographer and filmmaker who specializes in telling stories that shed light on issues of global concern. Her first book, Living Proof: Courage in the Face of AIDS, was published by Abbeville Press and accompanied by shows in Tokyo, Berlin, the USA, and at the United Nations World AIDS Conference. She directed a television series for Oxygen Media called Womenshands as well as Women… on Family, a program for PBS. Carolyn founded the non-profit 100 People Foundation which creates educational films and curricula for school children worldwide. She has spent the last two years interviewing nurses from all over the country for the book and documentary film: The American Nurse. For more information about Carolyn and Dying in America, visit the websites below. The Dying in America website, supported by a grant from the Jonas Center for Nursing and Veterans Healthcare, is the first phase of the project, which will culminate in a feature length documentary that will seek to change the way Americans confront death.

Websites: www.carolynjones.com

                www.dyinginamerica.org 

Remember to tune in every Monday for a new episode, subscribe on iTunes and leave a review if you enjoy this content!

Until next time …

Face Your Fear           BE Ready          Love Your Life

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