Ep. 70 Looking Back on 2016: A Positive Year for End-of-Life Issues

In this final episode of 2016 Dr. Wyatt thanks all of the patrons who have generously made contributions on Patreon.com/eolu this year! Thank you for offering your support for this podcast and the End-of-Life University interview series!

In this look back at 2016 we talk about the following positive events in the end-of-life arena:

  • In January JAMA dedicated a special issue to “Death, Dying and the End-of-Life”, which represents a positive breakthrough in awareness of EOL issues by the medical profession
  • Medical schools began adopting new training programs for students in pain management, palliative care, and communication skills around advance care planning. There is a college-level program that pairs pre-med students with hospice patients
  • Nursing homes and long-term care facilities are bringing in children and college students to interact with patients
  • Dementia rates in the US  have dropped in the past year
  • Pilot studies are underway involving providing education and training to family caregivers and providing a small stipend to caregivers
  • A demonstration project is underway to study the benefits of providing curative care simultaneously with hospice care
  • Studies showed that palliative care lowers healthcare costs along with providing increased quality of life, improved pain management and fewer hospital days
  • Harvard study of adult development showed that relationships are a key to longevity
  • California and Colorado both passed assisted dying laws in 2016
  • The nation’s first conference on VSED was held this year
  • Conversation Sabbath took place for the first time in November, bringing discussions about death and dying into places of worship
  • Dying to Know Day was held in the US, inspired by the movement in Australia
  • Miss Norma, a 90-year old woman who refused treatment for her cancer, spent most of the year traveling around the country in an RV with her son and daughter-in-law, fully enjoying the last days of her life

Thank you for tuning in to the EOLU Podcast during 2016! I hope this has been a positive and productive year for you. May 2017 be filled with growth, surprises, peace and joy! See you next year and until then …

Face Your Fears.              BE Ready.              Love Your Life.

Ep. 62 October End-of-Month Update – Halloween Edition

 

Dr. Wyatt thanks her newest Patreon.com supporter Tracy Zagata. You can become a supporter as well by going to Patreon.com/eolu and signing up!

Sign up for Death Expo which will take place Nov. 10-13, and hear 12 speakers on EOL issues. Go to DeathExpo.com to register free to tune in to these excellent presentations.

This episode is taking place on Halloween and the Day of the Dead. Dr. Wyatt includes the following updates:

  • CMS report 52% increase in Medicare spending on hospice between 2007 and 2015 due to 38% increase in the number of patients receiving hospice care, primarily patients with dementia
  • the DEA is mandating 34% decrease in opioid production due to dramatic increase in opioid-related deaths since 1999 – rate has quadrupled during that time frame
  • JAMA Oncology reports that the cost of secobarbital, the drug most frequently prescribed in assisted dying cases, has increased by $25oo; there is no explanation except that drug companies can get away with it
  • California is the first state to require that palliative care teams have a chaplain for those patients who want to receive spiritual care
  • Debra Beaulieu writes in HealthLeaders Media that all clinicians should know the following about palliative care: 1) that it’s not just for dying patients 2) that it is often underutilized and 3) all clinicians should have basic palliative care skills
  • Study in J. Palliative Med showed that home-based palliative care (as opposed to hospital-based care) meets more of patients’ needs in the last 3 months of life and costs $12,000 less per patient
  • Controversial “doll therapy” for dementia patients
  • Study shows that 11% of female caregivers over the age of 50 have to leave their employment to fulfill caregiver duties, costing $300,000 in lost wages, benefits, and Social Security over time
  • Census data reveals that currently 25% of seniors are considered “Elder Orphans,” meaning that they have no children or close family to care for them; these numbers will only grow as Baby Boomers age, reinforcing the need for more caregivers
  • Medicare Care Choice Pilot Program is currently underway; patients can receive home-hospice care while continuing curative treatments if they have a diagnosis of cancer, COPD, CHF, or HIV; there are 140 participating hospices in the program
  • Survey shows that 1/2 of MS patients would consider medically assisted dying in the case of unbearable pain, being a financial burden to others, or if unable to enjoy what makes life worth living
  • Study reveals the 69% of MOLST or POLST forms have incomplete information and 14% have conflicting choices, making them nearly impossible for care providers to follow
  • the nation’s first conference on VSED was held in October at the Seattle U. School of Law and was featured in an article in the NY Times. Phyllis Shacter was a speaker – you can hear her EOLU interview in episode 25
  • Conversation Sabbath will take place November 11-20 with >30 congregations from various faiths participating; the focus will be on EOL conversations and theconversationproject.org will provide tools and resources for the event
  • Andrew Henderson, 28 year old performance artist who is terminally ill has created an art performance called Taking it to the Grave and will tattoo the secrets of his audience on his body before he dies
  • Miss Norma, the 90 year old woman who chose to go on a cross-country RV tour with her son and daughter-in-law rather than undergo treatment for cancer, has died

Have a safe and meaningful Day of the Dead! Tune in every Monday for a new episode and support EOLU at Patreon.com/eolu. Until next week remember to:

Face Your Fears.                 BE Ready.                Love Your Life.

 

Ep. 25 Choosing Death by VSED with Phyllis Shacter

Join Dr. Karen Wyatt and her guest Phyllis Shacter, an advocate for natural dying through voluntary stopping of eating and drinking (VSED.) Phyllis will discuss the story of her husband Alan who made the choice to stop eating and drinking rather than progress into the later stages of Alzheimer’s disease. In this interview you will learn:

-factors that must be considered before making a decision for VSED as a means of dying with dignity
-the role a caregiver must play in this type of decision
-a personal perspective on the process of dying when a choice for VSED has been made

Join Dr. Karen Wyatt and her guest Phyllis Shacter, an advocate for natural dying through voluntary stopping of eating and drinking (VSED.) Phyllis will discuss the story of her husband Alan who made the choice to stop eating and drinking rather than progress into the later stages of Alzheimer’s disease. In this interview you will learn:

  • factors that must be considered before making a decision for VSED as a means of dying with dignity
  • the role a caregiver must play in this type of decision
  • a personal perspective on the process of dying when a choice for VSED has been made